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Looking forward to your baby

Congratulations!

You are having a baby. You also know that your baby will be born with Down’s syndrome or has a high chance of this.

You may have been reading about babies and you may have been reading about Down’s syndrome.

You might be wondering what your baby will be like and who they might take after?

‘I wish I had known how beautiful my baby would be and that he would develop and do all the things other babies do, albeit at a slower pace, and that he would teach me a lot of things’

‘Take time to enjoy your pregnancy. Continue to prepare for your baby the same as you would have without the diagnosis.’

‘I was 11 weeks pregnant when we discovered that our son would have Down’s syndrome. It was a shock and it took a few weeks to adjust to the news. We concentrated on getting some basic information to discuss with our children. Needless to say he is gorgeous and our kids love that he looks just like them when they were babies. They are not really interested in chromosome counts!’

If you would like to get to know other family’s in your area, you can check to see if there is one of our affiliated local support groups near you.

Our closed Facebook group for parents with children ages birth to 11 years is a great place to connect with other parents. Our Information Officers monitor the group. Where appropriate they will answer questions posted by parents and provide information.

Our online baby and pregnancy support group gives you the opportunity to meet our team and ask questions on any topic, including development, communication and benefits.

The group runs for a series of four fortnightly meetings and is designed to offer support to parents of babies up to 18 months of age as well as expectant parents looking forward to welcoming their new baby.

Our Helpline

We answer questions about Down’s syndrome.

We offer a listening ear.

We provide information and support.

Call us on 0333 1212 300

Monday to Friday, 10am – 4pm.

Or contact us using the form below…

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