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Information

montage of publications

Literature

We hope you will find the following selection of materials and recommended reading helpful.  

The majority of the Down's Syndrome Association's publications can be read or downloaded free of charge online.  Printed copies are available from our national office. Single copies of most leaflets and information sheets are available free to members. Information on benefits is free.  For others, and for larger orders, prices are as shown.   

Most of the books we recommend have direct links for ordering from Amazon.co.uk.  Any books ordered in this way generate a small donation for us from Amazon at no additional cost to you.

DSA Literature and Materials
Recommended Reading

DSA Literature and Materials

The following materials are produced by and available from the Down's Syndrome Association. We aim to make as much as possible available to be read and/or downloaded free from this website.

You can also contact the Down's Syndrome Association on Tel: 0845 230 0372 or e-mail info@downs-syndrome.org.uk and ask for printed materials to be posted. There may be a small charge for this service.

Benefits InformationBenefits Information
Education InformationEducation Information
General InformationGeneral Information
Medical and Health InformationMedical and Health Information
ReportsReports
Speech and Language InformationSpeech and Language Information
VideosVideos

Benefits Information

A GUIDE TO FAMILIES WISHING TO MAKE LEGAL PROVISION FOR A LEARNING DISABLED MEMBER A GUIDE TO FAMILIES WISHING TO MAKE LEGAL PROVISION FOR A LEARNING DISABLED MEMBER

A. B Quinn Anthony Quinn & Company 1997
Leaflet
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£1.50 plus p & p
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Sorry. This publication is not available on-line. Please contact the Down's Syndrome Association if you would like a printed copy to be sent to you.

BENEFITS AT 16 BENEFITS AT 16

Christina Katic/Helen Wild DSA, April 2007
Leaflet
One printed copy of this publication is available free to members on request. Contact us
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A guide to benefits which can be claimed at age 16 for young people with Down's syndrome.

GUIDELINES TO CLAIMING DLA - AGE  0-3 GUIDELINES TO CLAIMING DLA - AGE 0-3

Christina Katic/Helen Wild DSA, April 2007
Leaflet
One printed copy of this publication is available free to members on request. Contact us
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome, from birth to 3 years.

GUIDELINES TO CLAIMING DLA - AGE  3-8 GUIDELINES TO CLAIMING DLA - AGE 3-8

Christina Katic/Helen Wild DSA, April 2007
Leaflet
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome. Ages 3-8

GUIDELINES TO CLAIMING DLA - AGE  8-16 GUIDELINES TO CLAIMING DLA - AGE 8-16

Christina Katic/Helen Wild DSA, April 2007
Leaflet
One printed copy of this publication is available free to members on request. Contact us
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome. Ages 8-16

GUIDELINES TO CLAIMING DLA - AGE 16+ GUIDELINES TO CLAIMING DLA - AGE 16+

Christina Katic/Helen Wild DSA, April 2007
Leaflet
One printed copy of this publication is available free to members on request. Contact us
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome. Age 16+

WHAT CAN YOU CLAIM 2007? WHAT CAN YOU CLAIM 2007?

Christina Katic/ Helen Wild DSA, April 2007
Leaflet
One printed copy of this publication is available free to members on request. Contact us
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A basic guide to Social Security benefits which people with learning disabilities may be able to claim.

WORKING TAX CREDIT AND CHILD TAX CREDIT WORKING TAX CREDIT AND CHILD TAX CREDIT

Christina Katic/Helen Wild DSA, April 2007
Leaflet
One printed copy of this publication is available free to members on request. Contact us
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A guide to the new tax credits, Working Tax Credit and Child Tax Credit

Education Information

A GUIDE TO THE STATEMENT OF SPECIAL EDUCATIONAL NEEDS A GUIDE TO THE STATEMENT OF SPECIAL EDUCATIONAL NEEDS

Sally Capper DSA, 1999
Leaflet
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Information and guidance about the Statement of Special Educational Needs for parents of children with Down's syndrome

ACCESS TO EDUCATION ACCESS TO EDUCATION

DSA 2004
Book
£5.00 plus p & p
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A report on the barriers to education for children with Down's syndrome

ACCESS TO EDUCATION - EXPERIENCES OF TRANSITION ACCESS TO EDUCATION - EXPERIENCES OF TRANSITION

Jane Beadman (DSA UK Education Consortium, 2004)
Book
£5.00 plus p & p
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A report on the experiences of transition from school to further education for children with Down's syndrome

ADOLESCENCE AND SEXUALITY ADOLESCENCE AND SEXUALITY

Jane Beadman DSA, 2005
Leaflet
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Notes for teachers on sexuality and relationships education for students with Down's syndrome

ALTERNATIVE ACCREDITATION AT KEY STAGE 4 ALTERNATIVE ACCREDITATION AT KEY STAGE 4

Sandy Alton DSA, 2006
Leaflet
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Information for teaching professionals on alternative accreditation for pupils with Down's syndrome.

BEHAVIOUR BEHAVIOUR

Dr Stephanie Lorenz DSA, 2006
Leaflet
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Notes for teachers on behaviour issues in children with Down's syndrome.

EARLY YEARS EARLY YEARS

Dr Stephanie Lorenz DSA, 2006
Leaflet
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Notes for early years professionals on children with Down's syndrome.

EDUCATION SUPPORT CD-ROM FOR SCHOOLS EDUCATION SUPPORT CD-ROM FOR SCHOOLS

CD-ROM
£5.00 plus p & p
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All the DSA education information on one CD-ROM, including: Education Support Packs, mainstream and special versions; all Education Information Sheets; Including Pupils at primary and secondary levels, and the Guide to the Statement of Special Educational Needs. Plus P scales and assessment examples, and examples of differentiated materials across the curriculum plus an interactive visual timetable for parents & teachers use. CD-ROM suitable for Windows PC computers

EDUCATION SUPPORT PACK - MAINSTREAM: PRIMARY AND SECONDARY EDUCATION SUPPORT PACK - MAINSTREAM: PRIMARY AND SECONDARY

UK Education Consortium for for Pupils with Down's syndrome, 2002
Support Pack
£10.00 plus p & p
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A comprehensive range of practical advice, information and materials for any front line education professional who is including, or planning to include a pupil with Down's syndrome in mainstream school. WINNER OF NASEN/TES BOOK AWARD 2003

EDUCATION SUPPORT PACK - SPECIAL SCHOOLS EDUCATION SUPPORT PACK - SPECIAL SCHOOLS

UK Education Down's Syndrome Education Consortium, 2004
Support Pack
£10.00 plus p & p
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The Special Schools Pack is a comprehensive guide for pupils with Down's syndrome in special schools. It comes in loose-leaf binders format.

FINE MOTOR SKILLS FINE MOTOR SKILLS

Sandy Alton DSA 2005
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Notes for teachers on fine motor skills development in children with Down's syndrome.

ICT info sheet 1 - COMPUTERS AS AN AID TO LEARNING ICT info sheet 1 - COMPUTERS AS AN AID TO LEARNING

Bob Black, DSA Education Consortium 2006
Leaflet
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Information on how computers can be used to facilitate learning for children with Down's syndrome, guidance on suitable software and resource list.

ICT info sheet 2 - SUITABLE SOFTWARE FOR UNDER 7&quote;S WITH DS ICT info sheet 2 - SUITABLE SOFTWARE FOR UNDER 7'S WITH DS

Judith Stansfield 2006
Leaflet
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A comprehensive list of software suitable for use in the Early Years and keystage 1. Advice on getting started and making computers accessible for young children with Down's syndrome.

INCLUDING PUPILS WITH DOWN&quote;S SYNDROME - EARLY YEARS INCLUDING PUPILS WITH DOWN'S SYNDROME - EARLY YEARS

DSA UK Education Consortium (DSA and DS Scotland 2006)
Book
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Information for Early Years practitioners on the learning profile of children with Down's syndrome and good practice in their education.

INCLUDING PUPILS WITH DOWN&quote;S SYNDROME - FURTHER EDUCATION INCLUDING PUPILS WITH DOWN'S SYNDROME - FURTHER EDUCATION

DSA UK Education Consortium (DSA and DS Scotland 2006)
Book
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Informatio for teachers and support staff on providing positive and effective support for students with Down's syndrome

INCLUDING PUPILS WITH DOWN&quote;S SYNDROME - PRIMARY INCLUDING PUPILS WITH DOWN'S SYNDROME - PRIMARY

Sandy Alton DSA & DS Scotland, 2000
Book
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Information for teachers and learning support assistants in primary schools

INCLUDING PUPILS WITH DOWN&quote;S SYNDROME - SECONDARY INCLUDING PUPILS WITH DOWN'S SYNDROME - SECONDARY

Sandy Alton DSA & DS Scotland, 2000
Book
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Information for teaching professionals on including pupils with Down's syndrome in mainstream secondary school

NUMERACY AND MATHEMATICS NUMERACY AND MATHEMATICS

Cecilie Mackinnon DSA, 2005
Leaflet
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Notes for teachers on strategies for teaching numeracy and maths to pupils with Down's syndrome.

READING READING

Sandy Alton DSA, 2006
Leaflet
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Notes for teachers on reading strategies for pupils with Down's syndrome.

SECONDARY TRANSFER GUIDE SECONDARY TRANSFER GUIDE

Herfordshire County Council and DSA 2006
Support Pack
£25.00 plus p & p
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An easy-to-follow guide to making the big step from primary to secondary school.

SHORT-TERM AUDITORY MEMORY SHORT-TERM AUDITORY MEMORY

Sandy Alton DSA, 2006
Leaflet
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Notes for teachers on short term auditory memory problems in children with Down's syndrome.

THE 14+ TRANSITION REVIEW THE 14+ TRANSITION REVIEW

Bob Black DSA, 2005
Leaflet
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Information for teachers on transition planning and post 16 options for students with Down's syndrome

TRANSITION FROM PRIMARY TO SECONDARY SCHOOL TRANSITION FROM PRIMARY TO SECONDARY SCHOOL

Sandy Alton DSA, 2006
Leaflet
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Notes for teachers on the transition in schools from Primary to Secondary School.

General Information

CONTINUING PREGNANCY WITH A DIAGNOSIS OF DOWN&quote;S SYNDROME - A GUIDE FOR PARENTS CONTINUING PREGNANCY WITH A DIAGNOSIS OF DOWN'S SYNDROME - A GUIDE FOR PARENTS

Stuart Mills (DSA 2006)
Book
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A booklet for those who have had a pre-natal diagnosis of Down's syndrome and are continuing pregnancy. With personal stories from parents as well as information about the condition.

DOWN&quote;S SYNDROME - A LEAFLET FOR FRIENDS AND FAMILY DOWN'S SYNDROME - A LEAFLET FOR FRIENDS AND FAMILY

Stuart Mills DSA, 2007
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This was written in response to a frequent enquiry: 'My friend has had a baby with Down's syndrome - how can I help?' Basic information and advice on supporting your friend or relative.

DOWN&quote;S SYNDROME - A NEW PARENT&quote;S GUIDE DOWN'S SYNDROME - A NEW PARENT'S GUIDE

Stuart Mills DSA, 2007
One printed copy of this publication is available free to members on request. Contact us
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This booklet acknowledges the profound feelings experienced by many parents, addresses common questions and concerns, and includes practical tips on feeding and development. An older version of this booklet is available in Arabic, Bengali, Chinese, Gujarati, Punjabi, Urdu and Welsh.

DOWN&quote;S SYNDROME - INFORMATION FOR EMPLOYERS DOWN'S SYNDROME - INFORMATION FOR EMPLOYERS

Stuart Mills DSA, 2007
One printed copy of this publication is available free to members on request. Contact us
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People with Down's syndrome have much to offer employers. This leaflet contains basic information that employers need to know, a resource list, and tips on making your workplace work for people with Down's syndrome

HOUSING RESOURCES HOUSING RESOURCES

DSA 2006
Leaflet
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A list of organisations and information resources which can help with housing for people with Down's syndrome

PEOPLE WITH DOWN&quote;S SYNDROME - YOUR QUESTIONS ANSWERED PEOPLE WITH DOWN'S SYNDROME - YOUR QUESTIONS ANSWERED

Susannah Seyman DSA, 2007
Leaflet
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Answers to some of the questions most often asked about Down's syndrome.

SIBLINGS SIBLINGS

Stuart Mills (DSA, 2000)
Leaflet
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Information for young people who have a sibling with Down's syndrome, tips for parents, and resources for siblings

TALES OF NORMANSFIELD, A LANGDON DOWN LEGACY TALES OF NORMANSFIELD, A LANGDON DOWN LEGACY

Andy Merriman, Published by DSA, 2007
Book
Plus £2.50 p&p first copy, any additional copies £1.00 p&p
ISBN 0955522803
£9.99 plus p & p
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'Tales of Normansfield' by Andy Merriman, is published by the UK Down's Syndrome Association (DSA). The book traces the history of Normansfield hospital from its beginnings to the building's current role as the home of the DSA. Spanning 150 years, this authoritative publication explores the vision of the hospital's founder, John Langdon Down, from whom the condition now takes its name. His groundbreaking use of educative ideas, drama and music therapy is a story of enlightenment and dedication.

THE GENETICS OF DOWN&quote;S SYNDROME - A GUIDE FOR PARENTS AND OTHER CARERS THE GENETICS OF DOWN'S SYNDROME - A GUIDE FOR PARENTS AND OTHER CARERS

Anna Kessling and Mary Sawtell DSA, 1996
Leaflet
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A leaflet which explains this subject clearly and comprehensively

Medical and Health Information

AGEING AND ITS CONSEQUENCES FOR PEOPLE WITH DOWN&quote;S SYNDROME AGEING AND ITS CONSEQUENCES FOR PEOPLE WITH DOWN'S SYNDROME

Prof. Tony Holland & Marie Benton DSA, 2004
Leaflet
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Highlighting issues that may prove particularly relevant to people with Down's syndrome and their carers as they get older

ATLANTO AXIAL INSTABILITY - NOTES FOR PARENTS AND OTHER CARERS ATLANTO AXIAL INSTABILITY - NOTES FOR PARENTS AND OTHER CARERS

Dr Jennifer Dennis DSA, 1995
Leaflet
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Up to date information, clarifying what carers need to know about detection, sporting activities etc. We suggest you also read the information pack from the British Gymnastics Association, below.

Atlanto-Axial Information Pack Atlanto-Axial Information Pack

British Gymnastics Association
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Guidance on screening for Atlanto-Axial Instability in people with Down's syndrome prior to taking part in gymnastics or other sports. Please note this is not a DSA publication. See also the DSA booklet above.

BEREAVEMENT BEREAVEMENT

Stuart Mills DSA, 2006
Leaflet
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Some information and guidance on helping people with Down's syndrome cope with a bereavement.

DEPRESSION IN PEOPLE WITH A LEARNING DISABILITY DEPRESSION IN PEOPLE WITH A LEARNING DISABILITY

Royal College of Psychiatrists & DSA, 1996
Leaflet
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Help for the carers or families of a person with learning disabilities who may be depressed.

DIABETES AND DOWN&quote;S SYNDROME - NOTES FOR PARENTS & CARERS DIABETES AND DOWN'S SYNDROME - NOTES FOR PARENTS & CARERS

Peter Selby DSA, 1997
Leaflet
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This booklet discusses the relationship between diabetes and Down's syndrome and provides information on day to day management. Also answers the most common questions parents and carers have.

DOWN&quote;S SYNDROME AND ALZHEIMER&quote;S DISEASE DOWN'S SYNDROME AND ALZHEIMER'S DISEASE

Professor Tony Holland DSA 2004
Leaflet
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Information about Alzheimer's disease and ideas for treatment and support

DOWN&quote;S SYNDROME AND CHILDHOOD DEAFNESS - INFORMATION FOR FAMILIES DOWN'S SYNDROME AND CHILDHOOD DEAFNESS - INFORMATION FOR FAMILIES

National Deaf Children's Society, DSA & DSMIG, 2007
Leaflet
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DOWN&quote;S SYNDROME AND DEMENTIA WORKBOOK FOR STAFF DOWN'S SYNDROME AND DEMENTIA WORKBOOK FOR STAFF

Karen Dodd, Kiana Kerr and Scott Fern, DSA 2006
Book
£18.95 plus p & p
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This book primarily for support staff working with people with Down's syndrome who have dementia. It is designed for use with a specific named person, to enable staff to offer them the most effective care possible as the person's condition progresses and their needs change...

EYE PROBLEMS IN CHILDREN WITH DOWN&quote;S SYNDROME - NOTES FOR PARENTS AND CARERS EYE PROBLEMS IN CHILDREN WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS

Barbara Crofts DSA, 1997
Leaflet
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Up to date information on the eye problems that can occur in children with Down's syndrome.

GASTROINTESTINAL PROBLEMS IN CHILDREN WITH DOWN&quote;S SYNDROME - NOTES FOR PARENTS AND CARERS GASTROINTESTINAL PROBLEMS IN CHILDREN WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS

Dr Liz Marder DSA, 1996
Leaflet
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An introduction to the gastrointestinal problems that can sometimes occur in children with Down's syndrome.

HEALTH - LOOKING AFTER YOURSELF HEALTH - LOOKING AFTER YOURSELF

DSA, 2002
Leaflet
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Accssible health information for adults with Down's syndrome including a photocopiable personal health record. This material comes with a separate 'notes for carers' section. See below.

HEARING PROBLEMS IN PEOPLE WITH DOWN&quote;S SYNDROME - NOTES FOR PARENTS AND CARERS HEARING PROBLEMS IN PEOPLE WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS

Dr Jennifer Dennis DSA 1995
Leaflet
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Contains information on glue ear, nerve deafness, grommets, hearing aids and testing hearing.

PERSONAL RELATIONSHIPS AND SEXUALITY RESOURCES PERSONAL RELATIONSHIPS AND SEXUALITY RESOURCES

DSA 2006
Leaflet
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Information about organisations and publications that focus on relationships and sexuality for people with learning disabilities

PREPARATION FOR MENSTRUATION PREPARATION FOR MENSTRUATION

Sarah Rutter & Mary Sawtell DSA, 1995
Leaflet
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A guidance sheet for carers looking at preparing teenage girls with Down's syndrome for menstruation

PROMOTING HEALTH IN PEOPLE WITH DOWN&quote;S SYNDROME PROMOTING HEALTH IN PEOPLE WITH DOWN'S SYNDROME

DSA, 2002
Leaflet
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This is a set of notes on medical issues to be used by the carers of adults with Down's syndrome. It complements Part 1 which is a Health Record to be used by the person with Down's syndrome.

SLEEP PROBLEMS SLEEP PROBLEMS

Dr Rebecca Stone DSA, 2001
Leaflet
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Notes for carers on coping with sleep problems in children with Down's syndrome.

THYROID DISORDER AMONG PEOPLE WITH DOWN&quote;S SYNDROME - NOTE FOR PARENTS AND CARERS THYROID DISORDER AMONG PEOPLE WITH DOWN'S SYNDROME - NOTE FOR PARENTS AND CARERS

Dr Jennifer Dennis DSA, 1995
Leaflet
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Up to date information on diagnosis and treatment

THYROID DISORDER AMONG PEOPLE WITH DOWN&quote;S SYNDROME - NOTES FOR DOCTORS THYROID DISORDER AMONG PEOPLE WITH DOWN'S SYNDROME - NOTES FOR DOCTORS

Dr Jennifer Dennis DSA, 1995
Leaflet
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Summaries what doctors need to know for diagnosis and treatment

Reports

ACCESS TO EDUCATION ACCESS TO EDUCATION

DSA 2004
Book
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A report on the barriers to education for children with Down's syndrome

ACCESS TO EDUCATION - EXPERIENCE OF EARLY YEARS PROVISION ACCESS TO EDUCATION - EXPERIENCE OF EARLY YEARS PROVISION

Stephanie Lorenz (DSA UK Education Consortium, 2006)
Book
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A report on the experience of early years provision for children with Down's Syndrome

ACCESS TO EDUCATION - EXPERIENCES OF TRANSITION ACCESS TO EDUCATION - EXPERIENCES OF TRANSITION

Jane Beadman (DSA UK Education Consortium, 2004)
Book
£5.00 plus p & p
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A report on the experiences of transition from school to further education for children with Down's syndrome

BENEFITS LOTTERY BENEFITS LOTTERY

Christina Katic DSA, 2001
Leaflet
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A survey of member's experiences of claiming welfare benefits

EXPERIENCES OF INCLUSION FOR CHILDREN WITH DOWN&quote;S SYNDROME IN THE UK EXPERIENCES OF INCLUSION FOR CHILDREN WITH DOWN'S SYNDROME IN THE UK

Stephanie Lorenz DSA, 1998
Support Pack
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Inclusion cases for children with Down's syndrome in the UK

HE&quote;LL NEVER JOIN THE ARMY HE'LL NEVER JOIN THE ARMY

Sarah Rutter & Susannah Seyman DSA, 1999
Book
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A report on a Down's Syndrome Association survey into attitutes to people with Down's syndrome amongst medical professionals

PREGNANCY AND BIRTH - experiences of parents who have a child with Down&quote;s syndrome PREGNANCY AND BIRTH - experiences of parents who have a child with Down's syndrome

Book
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A report on the experiences of parents of children with Down's syndrome during pregnancy and birth, including provision and handling of pre-natal testing, and the ways in which parents are told of their baby's disability, both pre- and post-natally.

THE INVISIBLE WORKFORCE THE INVISIBLE WORKFORCE

Jessica ffield DSA, 2008
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An evaluation of a survey among people with Down's syndrome of working age to find out about their employment experiences.

Speech and Language Information

Co-worker training Co-worker training

Symbol UK 2007
Download FREE Word Document

Information about the Speech and Language Therapy Co-worker Training programme run by the DSA and Symbol UK. This programme has been set up to address the shortage of speech therapy provision for children with Down's syndrome. For course details go to the Training section.

DYSFLUENCY, STAMMERING, GETTING STUCK DYSFLUENCY, STAMMERING, GETTING STUCK

Leela Baksi, Symbol UK
Leaflet
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This information is suitable for families, school staff and speech and language therapists. It includes practical activities and strategies to help with dysfluency and stammering as well as new makaton symbols for use in speech and language therapy.

HOW MUCH IS ENOUGH? Speech and language therapy provision for school aged children who have Down&quote;s syndrome HOW MUCH IS ENOUGH? Speech and language therapy provision for school aged children who have Down's syndrome

Leela Baksi, Symbol UK 2006
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Invaluable information for parents, therapists, teachers, and others involved in supporting the communication development of children with Down's syndrome. Includes a checklist to evaluate your child’s SALT provision, strategies for therapists, and advice on overcoming barriers to enable children with Down's syndrome to access sufficient and effective therapy.

OVERCOMING COMMUNICATION DIFFICULTIES OVERCOMING COMMUNICATION DIFFICULTIES

Leela Baksi, Symbol UK 2005
Leaflet
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Information for schools and colleges, community groups and services, employers, care staff, professionals, and families about what we can all do to tackle the challenges that people who have Down syndrome face when communicating

Speech, Language and Communication for Children with Down&quote;s Syndrome - Top Twenty questions! Speech, Language and Communication for Children with Down's Syndrome - Top Twenty questions!

Tessa Duffy (2004)