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Literature
We hope you will find the following selection of materials and recommended reading helpful.
The majority of the Down's Syndrome Association's publications can be read or downloaded free of charge online. Printed copies are available from our national office. Single copies of most leaflets and information sheets are available free to members. Information on benefits is free. For others, and for larger orders, prices are as shown.
Most of the books we recommend have direct links for ordering from Amazon.co.uk. Any books ordered in this way generate a small donation for us from Amazon at no additional cost to you.
DSA Literature and Materials
Recommended Reading
DSA Literature and Materials
Benefits Information
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A GUIDE TO FAMILIES WISHING TO MAKE LEGAL PROVISION FOR A LEARNING DISABLED MEMBER
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A. B Quinn Anthony Quinn & Company 1997
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Sorry. This publication is not available on-line. Please contact the Down's Syndrome Association if you would like a printed copy to be sent to you.
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BENEFITS AT 16
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Christina Katic/Helen Wild DSA, April 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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A guide to benefits which can be claimed at age 16 for young people with Down's syndrome.
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GUIDELINES TO CLAIMING DLA - AGE 0-3
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Christina Katic/Helen Wild DSA, April 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome, from birth to 3 years.
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GUIDELINES TO CLAIMING DLA - AGE 3-8
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Christina Katic/Helen Wild DSA, April 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome. Ages 3-8
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GUIDELINES TO CLAIMING DLA - AGE 8-16
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Christina Katic/Helen Wild DSA, April 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome. Ages 8-16
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GUIDELINES TO CLAIMING DLA - AGE 16+
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Christina Katic/Helen Wild DSA, April 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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Guidelines to claiming Disability Living Allowance for people with Down's syndrome. Age 16+
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WHAT CAN YOU CLAIM 2007?
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Christina Katic/ Helen Wild DSA, April 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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A basic guide to Social Security benefits which people with learning disabilities may be able to claim.
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WORKING TAX CREDIT AND CHILD TAX CREDIT
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Christina Katic/Helen Wild DSA, April 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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A guide to the new tax credits, Working Tax Credit and Child Tax Credit
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Education Information
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A GUIDE TO THE STATEMENT OF SPECIAL EDUCATIONAL NEEDS
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Sally Capper DSA, 1999
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £2.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Information and guidance about the Statement of Special Educational Needs for parents of children with Down's syndrome
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ACCESS TO EDUCATION
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DSA 2004
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Download FREE PDF
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A report on the barriers to education for children with Down's syndrome
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ACCESS TO EDUCATION - EXPERIENCES OF TRANSITION
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Jane Beadman (DSA UK Education Consortium, 2004)
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Download FREE PDF
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A report on the experiences of transition from school to further education for children with Down's syndrome
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ADOLESCENCE AND SEXUALITY
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Jane Beadman DSA, 2005
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for teachers on sexuality and relationships education for students with Down's syndrome
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ALTERNATIVE ACCREDITATION AT KEY STAGE 4
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Sandy Alton DSA, 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Information for teaching professionals on alternative accreditation for pupils with Down's syndrome.
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BEHAVIOUR
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Dr Stephanie Lorenz DSA, 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for teachers on behaviour issues in children with Down's syndrome.
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EARLY YEARS
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Dr Stephanie Lorenz DSA, 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for early years professionals on children with Down's syndrome.
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EDUCATION SUPPORT CD-ROM FOR SCHOOLS
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All the DSA education information on one CD-ROM, including: Education Support Packs, mainstream and special versions; all Education Information Sheets; Including Pupils at primary and secondary levels, and the Guide to the Statement of Special Educational Needs. Plus P scales and assessment examples, and examples of differentiated materials across the curriculum plus an interactive visual timetable for parents & teachers use. CD-ROM suitable for Windows PC computers
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EDUCATION SUPPORT PACK - MAINSTREAM: PRIMARY AND SECONDARY
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UK Education Consortium for for Pupils with Down's syndrome, 2002
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Download FREE PDF
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A comprehensive range of practical advice, information and materials for any front line education professional who is including, or planning to include a pupil with Down's syndrome in mainstream school. WINNER OF NASEN/TES BOOK AWARD 2003
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EDUCATION SUPPORT PACK - SPECIAL SCHOOLS
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UK Education Down's Syndrome Education Consortium, 2004
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Download FREE PDF
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The Special Schools Pack is a comprehensive guide for pupils with Down's syndrome in special schools. It comes in loose-leaf binders format.
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FINE MOTOR SKILLS
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Sandy Alton DSA 2005
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| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for teachers on fine motor skills development in children with Down's syndrome.
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ICT info sheet 1 - COMPUTERS AS AN AID TO LEARNING
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Bob Black, DSA Education Consortium 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Information on how computers can be used to facilitate learning for children with Down's syndrome, guidance on suitable software and resource list.
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ICT info sheet 2 - SUITABLE SOFTWARE FOR UNDER 7'S WITH DS
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Judith Stansfield 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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A comprehensive list of software suitable for use in the Early Years and keystage 1. Advice on getting started and making computers accessible for young children with Down's syndrome.
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INCLUDING PUPILS WITH DOWN'S SYNDROME - EARLY YEARS
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DSA UK Education Consortium (DSA and DS Scotland 2006)
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| Book |
| One printed copy of this publication is available free to members on request. Contact us |
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| £2.90 plus p & p |
| Add to basket |
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Download FREE PDF
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Information for Early Years practitioners on the learning profile of children with Down's syndrome and good practice in their education.
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INCLUDING PUPILS WITH DOWN'S SYNDROME - FURTHER EDUCATION
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DSA UK Education Consortium (DSA and DS Scotland 2006)
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| Book |
| One printed copy of this publication is available free to members on request. Contact us |
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| £2.90 plus p & p |
| Add to basket |
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Download FREE PDF
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Informatio for teachers and support staff on providing positive and effective support for students with Down's syndrome
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INCLUDING PUPILS WITH DOWN'S SYNDROME - PRIMARY
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Sandy Alton DSA & DS Scotland, 2000
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Download FREE PDF
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Information for teachers and learning support assistants in primary schools
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INCLUDING PUPILS WITH DOWN'S SYNDROME - SECONDARY
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Sandy Alton DSA & DS Scotland, 2000
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Download FREE PDF
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Information for teaching professionals on including pupils with Down's syndrome in mainstream secondary school
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NUMERACY AND MATHEMATICS
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Cecilie Mackinnon DSA, 2005
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for teachers on strategies for teaching numeracy and maths to pupils with Down's syndrome.
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READING
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Sandy Alton DSA, 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for teachers on reading strategies for pupils with Down's syndrome.
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SECONDARY TRANSFER GUIDE
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Herfordshire County Council and DSA 2006
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An easy-to-follow guide to making the big step from primary to secondary school.
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SHORT-TERM AUDITORY MEMORY
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Sandy Alton DSA, 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for teachers on short term auditory memory problems in children with Down's syndrome.
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THE 14+ TRANSITION REVIEW
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Bob Black DSA, 2005
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Information for teachers on transition planning and post 16 options for students with Down's syndrome
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TRANSITION FROM PRIMARY TO SECONDARY SCHOOL
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Sandy Alton DSA, 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Notes for teachers on the transition in schools from Primary to Secondary School.
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General Information
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CONTINUING PREGNANCY WITH A DIAGNOSIS OF DOWN'S SYNDROME - A GUIDE FOR PARENTS
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Stuart Mills (DSA 2006)
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| Book |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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A booklet for those who have had a pre-natal diagnosis of Down's syndrome and are continuing pregnancy. With personal stories from parents as well as information about the condition.
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DOWN'S SYNDROME - A LEAFLET FOR FRIENDS AND FAMILY
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Stuart Mills DSA, 2007
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| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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This was written in response to a frequent enquiry: 'My friend has had a baby with Down's syndrome - how can I help?' Basic information and advice on supporting your friend or relative.
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DOWN'S SYNDROME - A NEW PARENT'S GUIDE
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Stuart Mills DSA, 2007
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| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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This booklet acknowledges the profound feelings experienced by many parents, addresses common questions and concerns, and includes practical tips on feeding and development. An older version of this booklet is available in Arabic, Bengali, Chinese, Gujarati, Punjabi, Urdu and Welsh.
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DOWN'S SYNDROME - INFORMATION FOR EMPLOYERS
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Stuart Mills DSA, 2007
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| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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People with Down's syndrome have much to offer employers. This leaflet contains basic information that employers need to know, a resource list, and tips on making your workplace work for people with Down's syndrome
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HOUSING RESOURCES
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DSA 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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A list of organisations and information resources which can help with housing for people with Down's syndrome
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PEOPLE WITH DOWN'S SYNDROME - YOUR QUESTIONS ANSWERED
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Susannah Seyman DSA, 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £2.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Answers to some of the questions most often asked about Down's syndrome.
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SIBLINGS
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Stuart Mills (DSA, 2000)
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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Information for young people who have a sibling with Down's syndrome, tips for parents, and resources for siblings
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TALES OF NORMANSFIELD, A LANGDON DOWN LEGACY
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Andy Merriman, Published by DSA, 2007
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| Book |
| Plus £2.50 p&p first copy, any additional copies £1.00 p&p |
| ISBN 0955522803 |
| £9.99 plus p & p |
| Add to basket |
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'Tales of Normansfield' by Andy Merriman, is published by the UK Down's Syndrome Association (DSA).
The book traces the history of Normansfield hospital from its beginnings to the building's current role as the home of the DSA. Spanning 150 years, this authoritative publication explores the vision of the hospital's founder, John Langdon Down, from whom the condition now takes its name. His groundbreaking use of educative ideas, drama and music therapy is a story of enlightenment and dedication.
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THE GENETICS OF DOWN'S SYNDROME - A GUIDE FOR PARENTS AND OTHER CARERS
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Anna Kessling and Mary Sawtell DSA, 1996
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £2.50 plus p & p |
| Add to basket |
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A leaflet which explains this subject clearly and comprehensively
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Medical and Health Information
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AGEING AND ITS CONSEQUENCES FOR PEOPLE WITH DOWN'S SYNDROME
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Prof. Tony Holland & Marie Benton DSA, 2004
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Highlighting issues that may prove particularly relevant to people with Down's syndrome and their carers as they get older
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ATLANTO AXIAL INSTABILITY - NOTES FOR PARENTS AND OTHER CARERS
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Dr Jennifer Dennis DSA, 1995
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Up to date information, clarifying what carers need to know about detection, sporting activities etc. We suggest you also read the information pack from the British Gymnastics Association, below.
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Atlanto-Axial Information Pack
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British Gymnastics Association
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Download FREE PDF
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Guidance on screening for Atlanto-Axial Instability in people with Down's syndrome prior to taking part in gymnastics or other sports. Please note this is not a DSA publication. See also the DSA booklet above.
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BEREAVEMENT
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Stuart Mills DSA, 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Some information and guidance on helping people with Down's syndrome cope with a bereavement.
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DEPRESSION IN PEOPLE WITH A LEARNING DISABILITY
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Royal College of Psychiatrists & DSA, 1996
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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Help for the carers or families of a person with learning disabilities who may be depressed.
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DIABETES AND DOWN'S SYNDROME - NOTES FOR PARENTS & CARERS
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Peter Selby DSA, 1997
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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This booklet discusses the relationship between diabetes and Down's syndrome and provides information on day to day management. Also answers the most common questions parents and carers have.
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DOWN'S SYNDROME AND ALZHEIMER'S DISEASE
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Professor Tony Holland DSA 2004
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Information about Alzheimer's disease and ideas for treatment and support
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DOWN'S SYNDROME AND CHILDHOOD DEAFNESS - INFORMATION FOR FAMILIES
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National Deaf Children's Society, DSA & DSMIG, 2007
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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DOWN'S SYNDROME AND DEMENTIA WORKBOOK FOR STAFF
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Karen Dodd, Kiana Kerr and Scott Fern, DSA 2006
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This book primarily for support staff working with people with Down's syndrome who have dementia. It is designed for use with a specific named person, to enable staff to offer them the most effective care possible as the person's condition progresses and their needs change...
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EYE PROBLEMS IN CHILDREN WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS
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Barbara Crofts DSA, 1997
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Up to date information on the eye problems that can occur in children with Down's syndrome.
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GASTROINTESTINAL PROBLEMS IN CHILDREN WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS
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Dr Liz Marder DSA, 1996
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE Word Document
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An introduction to the gastrointestinal problems that can sometimes occur in children with Down's syndrome.
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HEALTH - LOOKING AFTER YOURSELF
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DSA, 2002
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £2.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Accssible health information for adults with Down's syndrome including a photocopiable personal health record. This material comes with a separate 'notes for carers' section. See below.
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HEARING PROBLEMS IN PEOPLE WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS
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Dr Jennifer Dennis DSA 1995
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Contains information on glue ear, nerve deafness, grommets, hearing aids and testing hearing.
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PERSONAL RELATIONSHIPS AND SEXUALITY RESOURCES
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DSA 2006
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE PDF
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Information about organisations and publications that focus on relationships and sexuality for people with learning disabilities
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PREPARATION FOR MENSTRUATION
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Sarah Rutter & Mary Sawtell DSA, 1995
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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A guidance sheet for carers looking at preparing teenage girls with Down's syndrome for menstruation
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PROMOTING HEALTH IN PEOPLE WITH DOWN'S SYNDROME
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DSA, 2002
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £2.50 plus p & p |
| Add to basket |
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Download FREE PDF
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This is a set of notes on medical issues to be used by the carers of adults with Down's syndrome. It complements Part 1 which is a Health Record to be used by the person with Down's syndrome.
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SLEEP PROBLEMS
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Dr Rebecca Stone DSA, 2001
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
|
| £1.50 plus p & p |
| Add to basket |
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Download FREE Word Document
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Notes for carers on coping with sleep problems in children with Down's syndrome.
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THYROID DISORDER AMONG PEOPLE WITH DOWN'S SYNDROME - NOTE FOR PARENTS AND CARERS
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Dr Jennifer Dennis DSA, 1995
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
|
| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Up to date information on diagnosis and treatment
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THYROID DISORDER AMONG PEOPLE WITH DOWN'S SYNDROME - NOTES FOR DOCTORS
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Dr Jennifer Dennis DSA, 1995
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
| Add to basket |
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Download FREE PDF
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Summaries what doctors need to know for diagnosis and treatment
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Reports
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ACCESS TO EDUCATION
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DSA 2004
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Download FREE PDF
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A report on the barriers to education for children with Down's syndrome
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ACCESS TO EDUCATION - EXPERIENCE OF EARLY YEARS PROVISION
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Stephanie Lorenz (DSA UK Education Consortium, 2006)
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Download FREE PDF
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A report on the experience of early years provision for children with Down's Syndrome
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ACCESS TO EDUCATION - EXPERIENCES OF TRANSITION
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Jane Beadman (DSA UK Education Consortium, 2004)
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Download FREE PDF
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A report on the experiences of transition from school to further education for children with Down's syndrome
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BENEFITS LOTTERY
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Christina Katic DSA, 2001
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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Download FREE Word Document
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A survey of member's experiences of claiming welfare benefits
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EXPERIENCES OF INCLUSION FOR CHILDREN WITH DOWN'S SYNDROME IN THE UK
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Stephanie Lorenz DSA, 1998
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Download FREE PDF
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Inclusion cases for children with Down's syndrome in the UK
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HE'LL NEVER JOIN THE ARMY
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Sarah Rutter & Susannah Seyman DSA, 1999
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A report on a Down's Syndrome Association survey into attitutes to people with Down's syndrome amongst medical professionals
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PREGNANCY AND BIRTH - experiences of parents who have a child with Down's syndrome
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Download FREE PDF
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A report on the experiences of parents of children with Down's syndrome during pregnancy and birth, including provision and handling of pre-natal testing, and the ways in which parents are told of their baby's disability, both pre- and post-natally.
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THE INVISIBLE WORKFORCE
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Jessica ffield DSA, 2008
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Download FREE PDF
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An evaluation of a survey among people with Down's syndrome of working age to find out about their employment experiences.
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Speech and Language Information
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Co-worker training
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Symbol UK 2007
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Download FREE Word Document
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Information about the Speech and Language Therapy Co-worker Training programme run by the DSA and Symbol UK. This programme has been set up to address the shortage of speech therapy provision for children with Down's syndrome. For course details go to the Training section.
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DYSFLUENCY, STAMMERING, GETTING STUCK
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Leela Baksi, Symbol UK
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
|
| £1.50 plus p & p |
| Add to basket |
|
Download FREE PDF
|
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This information is suitable for families, school staff and speech and language therapists. It includes practical activities and strategies to help with dysfluency and stammering as well as new makaton symbols for use in speech and language therapy.
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HOW MUCH IS ENOUGH? Speech and language therapy provision for school aged children who have Down's syndrome
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Leela Baksi, Symbol UK 2006
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Download FREE PDF
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Invaluable information for parents, therapists, teachers, and others involved in supporting the communication development of children with Down's syndrome. Includes a checklist to evaluate your childs SALT provision, strategies for therapists, and advice on overcoming barriers to enable children with Down's syndrome to access sufficient and effective therapy.
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OVERCOMING COMMUNICATION DIFFICULTIES
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Leela Baksi, Symbol UK 2005
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| Leaflet |
| One printed copy of this publication is available free to members on request. Contact us |
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| £1.50 plus p & p |
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Download FREE PDF
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Information for schools and colleges, community groups and services, employers, care staff, professionals, and families about what we can all do to tackle the challenges
that people who have Down syndrome face when communicating
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Speech, Language and Communication for Children with Down's Syndrome - Top Twenty questions!
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Tessa Duffy (2004)
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