This case study is written by George’s mum, Tatty. George is 18.
January 2023
George always surprises us. If he can’t do something he finds his very own way of achieving what he wants. He is resilient, loving and humorous.
George was diagnosed with Down’s syndrome at birth and ASD at 3 and a half years old.
He is non verbal and still in pads. He needs support with everything and constant supervision. He is now 18 and on the cusp of moving from school to college. George understands more than people presume and listens to far more than anyone expects!
He loves people and will show love or fondness for his familiar adults through hugs and touch and beautiful high pitched joyful sounds.
He does find some things difficult like transitioning from one activity to another. But his emotional regulation is improving as he matures.
He doesn’t yet have a form of communication which has worked for him but he consistently finds a way to let us know what he wants and what he feels.
Although life is often stressful, it is also deeply meaningful. You don’t need words to say ‘I love you’.
The DSA offered many training session which I attended when George was little. When he first received his dual diagnosis one of the Information Officers gave me articles to read so I could begin to understand our new trajectory.
Also the online monthly Down’s syndrome with complex needs group is invaluable and allows me feel part of a community which understands me and which I can in return offer support to. Finding where you belong is very important when you realise your child/young person doesn’t resemble a person with Down’s syndrome alone.