This study aims to explore the experiences of parents/carers in obtaining a specialist Down Syndrome (DS) speech and language assessment and if there was any impact from the outcomes of the assessment.
It involves completing an online questionnaire that should take around 10 minutes to fill in. Access to this questionnaire can be found via the following link: https://forms.gle/W53h9kUbxfLeds2cA.
It will be of relevance to parents/carers of children and young people with Down syndrome (up to the age of 25) who have had a Down syndrome specialist speech and language assessment through providers such as the Lejeune Clinic, Symbol UK, Lets GO!, and the DSA.
NHS speech and language therapy and some mainstream schools may not be aware of up-to-date resources and interventions that are specifically designed for or recommended for children and young people with DS. This project aims to see if these specialised assessments impact children and young people on a local level in terms of NHS provision, resources used at school and empowerment of parents.
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About the research team
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Louise Miller Louise Miller is currently studying for a distance learning MSc in Language and Communication Impairment in Children with the University of Sheffield. This research project forms her dissertation for this course. Her youngest son Coen has Down syndrome. Contact email: lcmiller1@sheffield.ac.uk |
Dr Chloë Bate Dr Chloë Bate is a University Teacher in Human Communication Sciences at the University of Sheffield and is the supervisor for this project. Chloë is the Course Director for PGT distance learning programmes in Language and Communication Impairment in Children (LACIC) and her research interests include speech, language, and literacy development and difficulties in children; and relationships between oral and written language. More information about Chloë can be found here. |