A team from Ulster University are undertaking a research project on the lives of teenagers who have Down’s syndrome.
We want to gain a deeper insight into what adolescents with Down’s syndrome experience in their day to day lives. Additionally, we want to explore their thoughts and feelings about elements of their daily lives, and identify any areas where they would like to see changes or improvements.
To do this, we are inviting adolescents with Down’s Syndrome to take part in a focus group.
To be eligible to take part, adolescents must:
- Be aged between 13 and 20 years old
- Live in Northern Ireland
- Speak English
Focus groups are planned to take place at Ulster University, Belfast. Dates are yet to be confirmed. If this is not a suitable location, we encourage you to sign up anyway as we will aim to arrange a more suitable location.
If you are interested in taking part, please click here to go through to the online sign-up sheet.
If you have any questions, please contact the PhD researcher Kiai Chambers at chambers-k11@ulster.ac.uk
Further information
- Research information (for adolescents) (pdf)
- Research information (for parents and carergivers) (pdf)
About the research team
Kiai Chambers
I am a PhD researcher at the School of Medicine in Ulster University. My research focuses on children with Down’s syndrome who are diagnosed with congenital heart disease, particularly the impact that having additional diagnoses such as CHD or autism have on the development and wellbeing of individuals with Down’s syndrome and their families.
Aoife Grenham McNamee
I am a PhD researcher at the School of Medicine in Ulster University. My project explores the development and wellbeing of teenagers with Down’s syndrome who also have congenital heart disease. I am passionate about supporting and promoting inclusivity for individuals with Down’s syndrome and their families in all areas of life.