Information and Support for Maternity Professionals
Management of Pregnancy
Revised April 2017
This fact sheet has been written to offer guidance to midwives, obstetricians and primary care teams about the ongoing management of pregnancy after a diagnosis of Down’s syndrome has been made during the antenatal period.
It explores issues which might be relevant to consider in a pregnancy where Down’s syndrome has been identified and how this maybe affect the developing baby. The leaflet includes identifying and preparing for health issues which may require action to optimise the health and safety of the baby during pregnancy, labour, delivery, and in the neonatal period. Download: Management of Pregnancy
Antenatal, Neonatal and Postnatal Care: Guide for Practitioners
Published 2015; Reviewed and updated 2018
A booklet written for healthcare professionals involved in antenatal, neonatal and postnatal care. It gives an overview of what Down’s syndrome is, how it can be identified and some examples of people living with Down’s syndrome today. The main focus of this booklet is to provide advice and guidance on telling parents that their unborn or newly born baby has Down’s syndrome. Therefore any clinical information provided is brief in nature. We have provided references for further reading and information. Download: Antenatal, Neonatal and Postnatal Care Guide for Practitioners
Our ‘Tell it Right’®’ Top Ten Tips
Sharing news that might be unexpected with prospective or new parents is probably one of the most important aspects of your role. We know that you will want to do this well and feel prepared and confident in answering any queries parents might have.
These tips will help healthcare professionals who are giving the diagnosis to ‘Tell it Right’®. Download your copy now.
If you work in prenatal, neonatal or postnatal maternity services, then you might be interested in our Tell It Right® Training.
If you are supporting women who are thinking about having screening for Down’s syndrome, the following prenatal FAQs may be useful.
We have also published a two-page fact checking document about non-invasive prenatal testing for Down’s syndrome. You can download this document here.
The Feotal Anomaly Screening Programme (FASP) website is a good source of additional information about tests during pregnancy, including screening for Down’s syndrome.
A non-invasive prenatal blood test (NIPT) is currently being offered privately to women and is available as a supplementary test to women in Wales who have had a higher chance result from a combined or quadruple test. Further diagnostic test (amniocentesis or CVS) would be necessary to give a confirmed prenatal diagnosis. You can read further information about NIPT by Public Health England here.
Screening is offered by the NHS but decisions as to whether to access any test must be based on personalised, informed, choice.If you or a woman you are supporting require support around making decisions, you can speak to one of our information officers by ringing our helpline on 0333 1212 300.
If you are supporting women who have had a prenatal diagnosis and have decided to continue with her pregnancy, then you might be interested in our booklet Looking Forward To Your Baby.
If you are supporting new parents, please let them know that we can provide them with a new parent pack and that we are here to listen and to answer their questions. If they join the DSA, they will get their first year of membership for free.
We have a New Parents’ Pack which includes a leaflet for family and friends which you can download as a reference copy. If you want hard copies to give to families, you can order them from us (0333 1212 300).
There is also a PCHR insert for babies born with Down’s syndrome which contains extra information including specific growth and weight charts, information about child development and a schedule of recommended health checks. You can access more information on the Down Syndrome Medical Interest Group (DSMIG) website or you can obtain a hardcopy from us (0333 1212 300).
If you would like to order multiple copies of the insert please contact Harlow Printing Ltd (0191 455 4286 or firstname.lastname@example.org).
The NCB Early Support booklet provides additional information about Down’s syndrome and is a useful resource for parents from the first weeks from birth across the age range, including looking at schools and other provisions.