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Pregnancy & Baby

Welcome to our information for pregnant women, expectant couples, maternity healthcare professionals and new parents. If you have any questions about Down’s syndrome during or after pregnancy please call our Helpline. We are trained to listen to you, answer questions about Down’s syndrome and to provide information and support.

We respond to enquiries on all topics related to Down’s syndrome including the lived experience of people who have Down’s syndrome, family life, health, education, benefits and support services. We also advocate for individuals and families.

Our information is for everyone. However, some of the resources here are designed specifically to support maternity healthcare professionals.

You can call us to discuss any matter related to Down’s syndrome or to discuss our information.

Information about DSA publications

Email info@downs-syndrome.org.uk

All DSA information resources listed below are available as free downloads.

We provide free Helpline postcards with an accompanying leaflet holder for maternity services.

We can provide free paper copies of Looking Forward to Your Baby for expectant parents on request.

We provide free New Parent Packs to new parents, hospitals and our affiliated support groups.

We provide free DSA membership for new parents for one year.

Health services should provide free Personal Child Health Record (PCHR) inserts for the child’s red book to all new parents.

The DSA will post a free PCHR insert to new parents where their health professional has not provided these important inserts.

The free PCHR insert can be downloaded from the Down Syndrome Medical Interest Group UK & Ireland website: https://www.dsmig.org.uk/information-resources/personal-child-health-record-pchr/.

Note for Health services: you can buy paper PCHR inserts from Harlow Printing Ltd: https://www.healthforallchildren.com/shop-base/shop/growth-charts/downs-syndrome-pchr-insert/, 0191 455 4286 or sales@harlowprinting.co.uk.

The site also provides the free download: https://www.healthforallchildren.com/wp-content/uploads/2020/02/A5-Downs-charts.pdf.

Resources and useful organisations

Down’s Syndrome Association

New Parent Pack

Our New Parent Pack may help answer your questions and concerns. It includes information about telling others your feelings, as well as information about Down’s syndrome, feeding your baby and about your baby’s development. Your relatives can also find out more in our Friends and Family leaflet.

Call 0333 1212 300 and ask for a pack to be sent to you.

Download leaflets from our New Parents Pack:

New parents can join the Down’s Syndrome Association for free for the first year of their baby’s life. You can find out more about becoming a member of the Down’s Syndrome Association. If you have any questions or would just like to talk, please call our Helpline on 0333 1212 300.

Other Resources

Language cards

Click the images to view or click the download button for a high resolution printable version.

Welsh language versions

Click the images to view or click the download button for a high resolution printable version.