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Down’s syndrome with complex needs – resources

Research and articles

Capone GT, Grados MA, Kaufmann WE, Bernad-Ripoll S, Jewell A. Down syndrome and comorbid autism-spectrum disorder: characterization using the aberrant behavior checklist. Am J Med Genet A. 2005 May 1;134(4):373-80. doi: 10.1002/ajmg.a.30622. PMID: 15759262.

DiGuiseppi C, Hepburn S, Davis JM, Fidler DJ, Hartway S, Lee NR, Miller L, Ruttenber M, Robinson C. Screening for autism spectrum disorders in children with Down syndrome: population prevalence and screening test characteristics. J Dev Behav Pediatr. 2010 Apr;31(3):181-91. doi: 10.1097/DBP.0b013e3181d5aa6d. PMID: 20375732; PMCID: PMC4419691.

Howlin P, Wing L, Gould J. The recognition of autism in children with Down syndrome– implications for intervention and some speculations about pathology. Dev Med Child Neurol. 1995 May;37(5):406-14. doi: 10.1111/j.1469-8749.1995.tb12024.x. Erratum in: Dev Med Child Neurol 1995 Aug;37(8):672. PMID: 7768340.

Lambert, K (2020) Parents’ experience of having a child with the dual-diagnosis of Down’s syndrome and Autism Spectrum Condition: A Narrative Analysis, DSA journal 141

Molloy CA, Murray DS, Kinsman A, Castillo H, Mitchell T, Hickey FJ, Patterson B. Differences in the clinical presentation of Trisomy 21 with and without autism. J Intellect Disabil Res. 2009 Feb;53(2):143-51. doi: 10.1111/j.1365-2788.2008.01138.x. PMID: 19198037.

Warner G., Moss J., Smith P., Howlin P. (2014) Autism Characteristics and Behavioural Disturbances in ∼ 500 Children with Down’s Syndrome in England and Wales. Autism Research, Vol 7, Issue 4, 433-441

Warner G and Howlin, P (2015) Autism Characteristics in Children with Down’s Syndrome in England and Wales DSA Journal; 132 Autumn/Winter 2015