Supporting pupils with more complex needs & health conditions in their life journey
The benefits to learners who have Down’s syndrome of an inclusive education have been documented over the last 30 years. The DSA is committed to children and young people having the option to attend local community schools and colleges however complex their needs may be.
We expect every child and young person who has Down’s syndrome to receive an equitable education with the support that both they and their families are entitled to in England, Wales and Northern Ireland. Pupils at school with medical conditions should be properly supported so that they have full access to education, including school trips and physical education. Pupils who have Down’s syndrome alongside long-term and complex medical conditions may require ongoing support, medicines or care while at school to help them manage their condition and keep them well.
Health and social care service providers should therefore be involved at all stages of the Education, Health and Care plan assessment process. Health has an impact on education therefore the plan should fully explain health issues, particularly any additional or complex health conditions, and should be clear how education settings should take these into account. Social care should also be involved, to support the child’s and family’s needs.
At the Down’s Syndrome Association we have a wealth of resources available to help families and educators learn more about conditions that may sit alongside Down’s syndrome. We also hold regular complex needs (including Autism) meetings for parents and carers. The meetings enable parents and specialists to share information and experiences and help to guide our work.
If you have any questions about health issues, you can call DSA’s Helpline (Tel: 0333 1212 300) or email using info@downs-syndrome.org.uk.
If an information officer is unable to answer your question, they can make a referral to the medical adviser at the UK & Ireland Down Syndrome Medical Interest Group (DSMIG).
Find out about the training we have available relating to complex needs and autism.
Please note DSMIG can provide general advice about health issues but they are not able to comment on individual test results. DSMIG are happy to take enquiries from health professionals but they will not take direct from enquiries from families or supporters.