Where to live

Whether you have a teenager, a young adult son or daughter or an older family member with Down’s syndrome, you may be thinking and talking about where the person for whom you care might live in the future.

For teenagers transition is generally a good place to start planning your options, though it can help to think about the options before that.

At whatever stage of life a person is at, thinking ahead may seem daunting. A lot of planning and discussion between the person for whom you care, your family and your local authority need to take place before a move happens.

It is really important to set the process in motion when it feels right for the person with Down’s syndrome and you as a family.

The first step towards planning for the future is usually sending a written request to your local authority for an assessment of need for the person for whom you care.

We are producing information about needs assessments which will become available by the end of November 2016.

Many people with Down’s syndrome will aspire to leave the family home to live in their communities with support.

Small but growing numbers of people with Down’s syndrome in their 20s, 30s and 40s are doing just that and living in a variety of settings including:

  • supported living
  • residential care and
  • shared lives placements.

Regardless of the type of setting, the person should be provided with the appropriate level of support to meet their needs.

Some people decide they prefer to carry on living with their family. In some circumstances, plans can be made with your local authority for the person for whom you care to be supported in the family home when you are no longer around.

lde_wbThere are quite a number of possibilities around living arrangements for people with learning disabilities.

There is a lot of information about what may be possible at the website of Learning Disability England.

ldhs_wbThe Foundation for People with Learning Disabilities has a Thinking Ahead guide which contains a table with information about accessing pre-existing housing and support in your locality and also information about how to set up provision from scratch.

We have created a series of resources on supported living and will be highlighting these over the coming weeks, alongside other resources around living the way you want, social care and assessments.

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These resources have been produced in response to what families have told us they need information about.

It is important to bear in mind that, whilst supported living comes in many forms and is planned according to the needs of individuals, it is not necessarily right for everyone.


If you have any questions or concerns you would like to discuss, please contact our Helpline on 0333 1212 300 or on info@downs-syndrome.org.uk.