Updated NHS Resource

On the 4 November 2019, the NHS published updated information about Down’s syndrome. This comprehensive online resource is intended as a reference for anyone looking for information about what living with Down’s syndrome is like.

We were delighted to have been working with NHS digital over the last few months and have been very encouraged by the way in which they have been keen to involve us and others across the community. They have also spoken to individuals with Down’s syndrome and their families.

We feel the new resource captures the ‘lived experience’ very effectively and will undoubtedly be well used by anyone looking for good quality, up to date and balanced information about Down’s syndrome. We are also pleased to be referenced as an organisation that can provide additional information, advocacy and support at all stages of life.

Please see the updated page here.