Our Tell It Right® information pack helps medical professionals provide up to date, accurate and balanced information about Down’s syndrome to prospective and new parents.
This year we added two new resources to the pack:
Looking Forward to Your Baby
Looking Forward to Your Baby is a document designed for expectant parents and is based on questions asked by real parents about what to expect. As well as guidance from our Information team it also includes reassurance and advice from parents about their own experiences.
… more than medical
This booklet, created by Lose the Label, is intended as a tool for professionals and as a resource for parents going through the screening process, whether they are discussing prenatal choices or have received a postnatal diagnosis of Down’s syndrome for their baby. It’s a collection of stories from families, about the realities of family life with a baby, child or adult who has Down’s syndrome.
Lose the Label have kindly given us permission to print copies of their first national edition of “… more than medical” to be part of the Tell It Right pack. Thank you to all the Lose the Label team for working with us.
Contacting private clinics
Last year we sent our Tell It Right® packs to every NHS maternity unit in England, Wales and Northern Ireland as well as to midwifery teaching faculties. This year we have sent packs to nearly 200 private maternity and screening clinics.
Training continues
We continue to deliver our Tell It Right ® Start It Right study days to midwives and student midwives throughout England, Wales and Northern Ireland.
Although our appeal for funding to run the study days continues, we are pleased to say we have received additional funding.
We also continue to work with The Royal College of Obstetricians and Gynaecologists and Down’s Syndrome Scotland to develop a new eLearning resource for health professionals working with pregnant women. We are also working with the National Screening Committee and Public Health England to develop training for all those professionals involved in the prenatal screening process. We will also be involved in developing resources to help both professionals and new parents understand the condition, and what life is like for people with Down’s syndrome.
