Life can often be a challenge for any parent or carer of a child with Down’s syndrome but for parents and carers from black, Asian and minority ethnic (BAME) backgrounds, there can be extra adversities. Carers from minority communities are often less aware of what support and advice is available and this has additional financial consequences; the support is more likely to be ineffectual and inadequate.
The Down’s Syndrome Association (DSA) aims to find out and acknowledge the differences within communities. This is important as it helps us to create services that are more inclusive.
What works for one culture and one family may not work for another and there can be no ‘one size fits all’ approach.
The DSA would like to know more about the common issues that people face, such as language barriers and discrimination. We want to know more about how these and other issues affect the BAME community.
It is important to remember that there is a lack of awareness about Down’s syndrome across all cultures. By making information on Down’s syndrome accessible to all, the DSA hopes to challenge stereotypes wherever they occur.
We are asking our supporters from black, Asian and minority ethnic backgrounds to reflect on their experiences so we can provide the best information and support possible for everyone. We would welcome your thoughts, ideas and suggestions.
Please email u firstname.lastname@example.org call our Information Team on +44 (0)333 1212 300. All correspondence will be treated with the strictest confidence.
If you would like to find out more information about Down’s syndrome within black, Asian and ethnic minorities or if you have any further queries please email email@example.com or contact +44 (0)333 1212 300. You can also find more information and resources for black, Asian and ethnic minority carers at the Children’s Society Engage Toolkit http://www.engagetoolkit.org.uk.
BBC Radio 4 broadcast a documentary called Down’s syndrome: it’s just two words. Salma, Mariam and Bilkish are three mothers whose children have Down’s syndrome. You can listen to 2 clips: “That was the first time ever I’ve talked to anyone about my son…” and “I feel like I’m the chosen one.” and learn more about the families. You can also hear the full documentary here: