From our Helpline team… September 2017

Hi all,

This is the first of our new Helpline Blogs. These blogs will highlight common topics and signpost where you can find out more information via our helpline team.

Recently, we have talked to families about their new babies and discussed issues that relate to mental capacity and making decisions.


We would like to again congratulate all of the parents and family carers on their new arrivals. All new parents or family carers are welcome to contact our helpline for information and to request our New Parent Pack. We also have specialist benefits advisors who can discuss benefits, for example, Child Benefit, Disability Living Allowance, Child Tax Credit and Carers Allowance. You can find out about benefits for babies here.

You may also wish to read about our Tell It Right® Start It Right Campaign, Training and Information Pack.

Here you can find out about our Tell It Right® Start It Right Royal College of Midwives accredited study days, our work with Public Health England (PHE) to develop training and resources and our work with The Royal College of Obstetricians and Gynaecologists and Down’s Syndrome Scotland with aims to develop a new eLearning resource for health professionals.

Making decisions

We have also been talking to individuals about different matters that have all related to misunderstandings about the Mental Capacity Act 2005 and Code of Practice. You can read more about the Mental Capacity Act and best interest decisions in the DSA Mental Capacity Act (2005) and Code of Practice factsheet.

A recent review conducted by the Local Government and Social Care Ombudsman discusses some of these complex issues. Click here to read the report (pdf download). The report also contains information about the options available in the event that there are disagreements about best interest decisions of the person to whom the decision relates.

You may wish to read our information about Making Choices and Making Decisions Post 16. We have also produced an Easy Read factsheet for people with Down’s syndrome on Making Choices that is part of our Living the Way You Want series.

If you have any queries regarding these topics or any other matters, please get in touch with our Information Officers by calling our helpline on 0333 1212 300 or emailing

All of our resources are free to download and, don’t forget, anyone can contact our Helpline.

Please consider joining the DSA as the more members we have, the stronger our voice will be.

You’ll find lots of ideas of other ways you can support the DSA here or follow us on Facebook or Twitter to see what others are doing.

Best wishes,

The DSA Information Team