Health Book presented to the Government at a reception sponsored by Down’s Syndrome All Parliamentary Party Group
On Tuesday 18th March, the Down’s Syndrome Association’s (DSA) Health Book was launched at a reception sponsored by Dr Hywel Francis, Chair of the Down’s Syndrome All Party Parliamentary Group as part of our Awareness Week campaign.
The reception was addressed by Jeremy Hunt, Health Minister and many other interested members of both Houses of Parliament and officials from the Health Department. They were joined by GP’s, people with Down’s syndrome, carers and organisations involved in providing support for people with the condition. During the reception guests heard from Professor Tony Holland from Cambridge University who explained the research behind the DSA’s Health Book, Sara Pickard who described how she managed her day to day health and Damon Hill OBE, Patron for the Down’s Syndrome Association who talked about the importance of supporting health monitoring from a parent’s point of view.
During the reception MP’s were asked to:-
• Ensure NHS Commissioners continue to fund the Annual Health Check Programme
• Urge the Department of Health to support the Health Book
The Down’s Syndrome Association’s annual awareness week campaign’s aim is to improve Health Care for Adults with Down’s Syndrome. The DSA produced an easy read health book for adults with Down’s syndrome to take to their annual health check and to general appointments. The Health Book has been sent to all DSA adult members with Down’s syndrome.
All members of the Association with Down’s syndrome will receive their Health Book when they reach 18 as part of their transition to adulthood. We are encouraging our adult members to take ownership of their own health with support from their carers.
We are offering support to GP’s
The Down’s Syndrome Association is offering support to GP’s through an area of its website developed specifically for GPs. Here they can access clear current information about various health conditions of significance to
people with Down’s syndrome – www.dshealth.org.uk. The information on the website is designed to be used in conjunction with the Health Book.
Awareness Week Call to Action
We are reaching out to the “hidden” adult population of people with Down’s syndrome. If you are involved in the care and support of an adult with Down’s syndrome please let them know they are entitled to FREE membership of the Down’s Syndrome Association.
Please ensure they sign up for FREE membership and they will receive their own Health Book.