Earlier this year, the DSA was pleased to be involved in shaping new guidance around growing older with a learning disability. We responded to a National Institute for Clinical Excellence (NICE) consultation on developing new standards for services to adopt. These have now been published. It covers all settings where care and support is provided, […]
The Down’s Syndrome Association is horrified by the details revealed today about the death of ‘Jo-Jo’. It is appalling to read about yet another person who had Down’s syndrome, and their family, being let down by the health and social care agencies that were supposed to be supporting them. The Safeguarding Adults Review published in […]
Today sees the culmination of coordinated work across the DSA with the submission of our response to The Department of Health and Social Care consultation on mandatory learning disability training for health and care professionals. For a long while now we have been concerned about the variability in quality of healthcare individuals with Down’s syndrome […]
Karen Gavin and her husband John are older parents, at 60 and 69. Their son Matthew (21) has the dual diagnosis of Down’s syndrome and severe Autism Spectrum Disorder, and the couple share looking after him at home. Matthew needs 1:1 care, 24 hours a day. John is at retirement age and works part-time and […]
Local authorities are failing adults with Down’s syndrome – resulting in unlawful practices in some cases – because they are taking too long to assess their basic needs and get adequate support in place. Almost half (43%) of adults surveyed, reported being in need of a Social Care Assessment, with some waiting as long as […]
Being able to communicate our needs, wishes and feelings is important for our sense of identity and our wellbeing. Making meaningful choices and developing friendships with the people we chose enables us to feel valued and increases our confidence and self-esteem. Conversely a lack of choice and control over our daily lives can lead to […]
An edited list of links to useful resources from other organisations: New EHCP animations from Independent Support With support from DfE, Independent Support has produced two short animation films, which can be used by local authorities, front-line services, professionals and parent groups in their communications with parents and young people. They explain the Education, Health […]
We are currently working on a new addition to our adult social care series. The new factsheet will help adults with Down’s syndrome (18+) and their supporters prepare for Needs Assessments and Carers Assessments in England. Local authorities complete Needs Assessments to work out how much care and support a person needs to live their day-to-day life. […]
The DSA has joined 75 other organisations as signatories of an open letter calling for the Prime Minister to urgently seek a cross-party solution to the health and care crisis.
Has the Care Act made a difference to you? TLAP want to hear your views
