Tell It Right® Update – the DSA’s work relating to the roll-out of NIPT within NHS settings in England and Wales

In the run up to the roll out of NIPT in England, the DSA and other organisations and parent focus groups, including Down’s Syndrome Research Foundation and SOFT-UK, who support families of children with Edwards or Patau’s syndromes, have been working, within limits, with the Public Health England (PHE) Fetal Anomaly Screening Programme. In addition, Public […]

Response to the Church of England’s discussion paper – ‘Valuing People with Down’s Syndrome’

We understand the concern that surrounds the proposed introduction of NIPT in NHS settings. The impact of the new test will be monitored, as recommended by the Nuffield Council on Bioethics last year, but at the moment we don’t yet know what effect offering NIPT more widely will have. The need for up-to-date, accurate, information […]

Tell It Right® Update – reaching professionals in the run up to the proposed introduction of non-invasive screening tests for Down’s syndrome

During the second half of 2017 we have been working with Public Health England, The Fetal Anomaly Screening Programme (FASP) and Antenatal Screening Wales to improve the quality of information that is provided to women at all stages of their pregnancy – from the beginning of their contact with their midwife (when options for antenatal […]

Tell It Right – Public Health England survey

As part of the work that Public Health England are doing to improve information and training about screening tests, they are reviewing and updating the booklet Screening Tests for You and Your Baby. You can find the existing document on Gov.uk by clicking here. This is the booklet given to all pregnant women and provides […]