In the run up to the roll out of NIPT in England, the DSA and other organisations and parent focus groups, including Down’s Syndrome Research Foundation and SOFT-UK, who support families of children with Edwards or Patau’s syndromes, have been working, within limits, with the Public Health England (PHE) Fetal Anomaly Screening Programme. In addition, Public […]
From 30 April 2018 Wales will be the first of the UK nations to offer women non-invasive prenatal testing (NIPT) as a supplementary test. All antenatal screening tests are elective. Currently pregnant women can choose whether they wish to have a test or not. NIPT is considered more reliable than the test that is currently […]
We understand the concern that surrounds the proposed introduction of NIPT in NHS settings. The impact of the new test will be monitored, as recommended by the Nuffield Council on Bioethics last year, but at the moment we don’t yet know what effect offering NIPT more widely will have. The need for up-to-date, accurate, information […]
Our work to ensure publicly available information on Down’s syndrome is balanced and up-to-date continues in 2018
During the second half of 2017 we have been working with Public Health England, The Fetal Anomaly Screening Programme (FASP) and Antenatal Screening Wales to improve the quality of information that is provided to women at all stages of their pregnancy – from the beginning of their contact with their midwife (when options for antenatal […]
Three speakers from our Tell It Right® Start It Right training days tell us why they want to be involved
Today we launch the Secret Life of Us campaign and we need your support.
Our packs help medical professionals provide up to date, accurate and balanced information about Down’s syndrome to prospective and new parents.
As part of the work that Public Health England are doing to improve information and training about screening tests, they are reviewing and updating the booklet Screening Tests for You and Your Baby. You can find the existing document on Gov.uk by clicking here. This is the booklet given to all pregnant women and provides […]
The DSA has joined 75 other organisations as signatories of an open letter calling for the Prime Minister to urgently seek a cross-party solution to the health and care crisis.