The Down’s Syndrome Association is horrified by the details revealed today about the death of ‘Jo-Jo’. It is appalling to read about yet another person who had Down’s syndrome, and their family, being let down by the health and social care agencies that were supposed to be supporting them. The Safeguarding Adults Review published in […]
2019 is passing very quickly and as we are between issues of The Journal we thought we’d gather together some news that might not have yet reached you yet.
The Down’s Syndrome Association gives a cautious welcome to the announcement today that the Government is to provide an additional £5 million for addressing the health inequalities experienced by people with a learning disability. Given the scale of the problems identified by the most recent LeDeR annual report, we fear however, that this funding is […]
Today sees the culmination of coordinated work across the DSA with the submission of our response to The Department of Health and Social Care consultation on mandatory learning disability training for health and care professionals. For a long while now we have been concerned about the variability in quality of healthcare individuals with Down’s syndrome […]
Carol Boys, Chief Executive of the DSA said today: “I have been appalled and saddened by the evidence given during the course of the inquest into Joe’s death…appalled that the care that Joe received at the Manchester Royal Infirmary was so disjointed and lacked any urgency or leadership; and saddened by Joe’s suffering and that […]
‘We are encouraged to hear permission has been granted for a judicial review to look at certain decisions made by the coroner at the inquest in to the death of Jacqueline Maguire who had Down’s syndrome. The Down’s Syndrome Association has ongoing and serious concerns about the premature deaths of people with Down’s syndrome. We […]
A number of families have contacted the DSA to highlight situations involving the justice system whereby their family member with Down’s syndrome has been called upon to provide evidence. Everyone with Down’s syndrome who comes into contact with the justice system should be considered a Vulnerable Witness. There are clear procedures that must be followed […]
The Down’s Syndrome Association was shocked and appalled by the recent revelations about the death of a man with Down’s syndrome, who developed gangrene whilst living in a supported living setting in Newham. This distressing case represents failings at a very basic level. The care provider failed to offer even the most basic standards of care […]
Local authorities are failing adults with Down’s syndrome – resulting in unlawful practices in some cases – because they are taking too long to assess their basic needs and get adequate support in place. Almost half (43%) of adults surveyed, reported being in need of a Social Care Assessment, with some waiting as long as […]
Public Health Wales recently released the latest version of their leaflet ‘Information for women offered further tests for suspected chromosomal conditions’. This document is designed for women who have chosen to take up the offer of screening and who have received a higher chance screening result. We believe it is imperative that the official information provided to […]
