Statement on inquest into the death of Joe Ulleri

Carol Boys, Chief Executive of the DSA said today: “I have been appalled and saddened by the evidence given during the course of the inquest into Joe’s  death…appalled that the care that Joe received at the Manchester Royal Infirmary was so disjointed and lacked any urgency or leadership; and saddened by Joe’s suffering and that […]

Statement on decision by High Court to permit judicial review into decisions made by coroner at the inquest into the death of Jacqueline Maguire

‘We are encouraged to hear permission has been granted  for a judicial review to look  at certain decisions made by the coroner at the inquest in to the death of Jacqueline Maguire who had Down’s syndrome.  The Down’s Syndrome Association has ongoing and serious concerns about the premature deaths of people with Down’s syndrome. We […]

DSA Statement on death of ‘Paul’ from Newham

The Down’s Syndrome Association was shocked and appalled by the recent revelations about the death of a man with Down’s syndrome, who developed gangrene whilst living in a supported living setting in Newham. This distressing case represents failings at a very basic level. The care provider failed to offer even the most basic standards of care […]

Information about Down’s syndrome for the NHS in Wales

Public Health Wales recently released the latest version of their leaflet ‘Information for women offered further tests for suspected chromosomal conditions’. This document is designed for women who have chosen to take up the offer of screening and who have received a higher chance screening result. We believe it is imperative that the official information provided to […]

Blue Badge News

The Government has clarified the blue badge criteria. Many of our members who previously received automatic entitlement to a blue badge (because they were awarded DLA mobility under the SMI criteria), no longer qualified for it once they moved to PIP because there is no criteria for behavioural issues. The requirement (for automatic blue badge) […]

Stunning image of the Seven Sisters by Norfolk photographer Emily Buck is winner of My Perspective 2018

Emily Buck has been announced as the overall winner of the Down’s Syndrome Association’s (DSA) international photographic competition, My Perspective 2018. Emily said of her winning image, Seven Sisters: “I like the contrast between the blue sky and the white cliffs and the different shapes of the beach and sea.” Emily also won the competition […]