Written by Anne-Marie, Jay’s mum Simon and Anne-Marie live in the North East of Scotland and have been married for three years. They welcomed what they call their ‘miracle baby boy’ Jay in August 2020 after being given a one in 46 chance of a Down’s syndrome diagnosis following a prenatal blood test at 17 […]
Written by Chris, Reggie’s dad Reggie was born in December 2019. He was actually due on Christmas day but arrived early by C-section due to my wife suffering from pre-eclampsia. It was all surreal the moment Reggie arrived which is all the more reason why I believe he is here to change the world. I […]
Written by Maria, Fergus’ mum I have always wanted to have children, I wanted to be a mum. I thought that I would get pregnant and I would love my baby from that day. Unfortunately, that was not the case for me. I was so pleased when I found out I was pregnant. Then, after […]
Written by Matilda’s mum Linzi I’ve never thought about having a child with a disability, but that became my reality when in March 2019, we got a confirmed pre-natal diagnosis of Down’s syndrome when I was around 17 weeks pregnant. Before this, I’d never given the possibility that I would carry a child with an […]
Written by Tess’ mum Ailis She just turned 18 months old and is loved and pestered in equal measures by her older brother Peadar, aged three. Tess and Peadar adore each other really and can usually be found wreaking havoc in the kitchen, with every toy dragged out from the playroom as it is obviously […]
Superstar fundraiser Chris Sharp and his Team Reggie pals raised more than £8,000 for the Down’s Syndrome Association (DSA) last year. Chris completed the 100 mile Ride London cycling event and also the Virtual London Marathon, setting up Team Reggie along the way. It’s a staggering amount and the DSA are eternally grateful for people […]
New mum Becca approached us as she has designed a range of digital social media cards. She wants to help share with people the terminology she would like to see used when talking about her son Arthur. The cards are available on our website for people to download and use to help spread the word. […]
We have produced a new helpline flyer that is to be sent to all maternity units across England and Wales. The flyer gives healthcare professionals the opportunity to pass on our details to new and expectant parents. The flyer signposts expectant and new parents to our Helpline for information and support. We hope to see […]
A guest post by Liz of Coraline and Us Liz and Kevin are parents to Coraline who is just coming up to her first birthday. Liz writes a beautiful blog called Coraline and Us. You can also find the family on Facebook and Instagram. As Liz puts it on her About Us page, after Coraline […]
Landmark new genetic testing has been developed to detect signs of a potentially fatal condition that can develop into full blown leukaemia in children with Down’s syndrome. Early intervention greatly increases survival chances for children who develop symptoms. All children with Down’s syndrome will receive a blood test within three days of birth to identify […]
