Neck Instability

We thought we would write a blog piece to raise awareness of neck instability in people with Down’s syndrome as it is a subject that sometimes causes worry for parents and professionals alike. Callers to our Helpline quite often ask whether or not children should take part in particular physical activities such as trampolining. Before […]

Statement on decision by High Court to permit judicial review into decisions made by coroner at the inquest into the death of Jacqueline Maguire

‘We are encouraged to hear permission has been granted  for a judicial review to look  at certain decisions made by the coroner at the inquest in to the death of Jacqueline Maguire who had Down’s syndrome.  The Down’s Syndrome Association has ongoing and serious concerns about the premature deaths of people with Down’s syndrome. We […]

NHS fees and exemptions

If you are on a low income you may be able to get help with healthcare costs: free prescriptions help with fares to hospital help with paying for glasses help with paying dentist’s fees help with the cost of wigs and fabric supports All children under 16, or under 19 and in full time education, […]

World Down Syndrome Congress: Day 1 Summary

Staff from our Information & Training team and WorkFit are learning lots and meeting some amazing people at the World Down Syndrome Congress in Glasgow. Here is a brief summary of the talks they attended and gave on Day 1 of the Congress. Sex and Relationship Education for People with Down’s Syndrome – from adolescence […]

All newborn children with Down’s syndrome should receive leukaemia test under new guidelines

Landmark new genetic testing has been developed to detect signs of a potentially fatal condition that can develop into full blown leukaemia in children with Down’s syndrome.  Early intervention greatly increases survival chances for children who develop symptoms. All children with Down’s syndrome will receive a blood test within three days of birth to identify […]