We thought we would write a blog piece to raise awareness of neck instability in people with Down’s syndrome as it is a subject that sometimes causes worry for parents and professionals alike. Callers to our Helpline quite often ask whether or not children should take part in particular physical activities such as trampolining. Before […]
Today sees the culmination of coordinated work across the DSA with the submission of our response to The Department of Health and Social Care consultation on mandatory learning disability training for health and care professionals. For a long while now we have been concerned about the variability in quality of healthcare individuals with Down’s syndrome […]
This blog is a summary of findings of a completed research study led by Stewart Morrison of the University of Brighton. Foot and ankle pain in children and young people are quite common and can range from skin and nails issues through to more complex bone and soft-tissue problems. Foot and ankle pain are often […]
‘We are encouraged to hear permission has been granted for a judicial review to look at certain decisions made by the coroner at the inquest in to the death of Jacqueline Maguire who had Down’s syndrome. The Down’s Syndrome Association has ongoing and serious concerns about the premature deaths of people with Down’s syndrome. We […]
Here is a summary of the findings of a research study, looking at sleep problems in adults, which was supported by the DSA. A big thank you to all of our members who took part in this valuable study. By Dr Rebecca Stores, University of Portsmouth. Background Sleep disturbance is common and can have harmful […]
If you are on a low income you may be able to get help with healthcare costs: free prescriptions help with fares to hospital help with paying for glasses help with paying dentist’s fees help with the cost of wigs and fabric supports All children under 16, or under 19 and in full time education, […]
The PCHR Insert is one of the tools that can be used to help you and health professionals ensure your child’s health is monitored properly.
Staff from our Information & Training team and WorkFit are learning lots and meeting some amazing people at the World Down Syndrome Congress in Glasgow. Here is a brief summary of the talks they attended and gave on Day 1 of the Congress. Sex and Relationship Education for People with Down’s Syndrome – from adolescence […]
Scientists are a step closer to understanding which genes are responsible for early onset Alzheimer’s disease in people with Down’s syndrome
Landmark new genetic testing has been developed to detect signs of a potentially fatal condition that can develop into full blown leukaemia in children with Down’s syndrome. Early intervention greatly increases survival chances for children who develop symptoms. All children with Down’s syndrome will receive a blood test within three days of birth to identify […]
