Challenging times

by Carol Boys, Chief Executive, Down’s Syndrome Association Since Tuesday, when we shared the Government’s decision to add adults who have Down’s syndrome to the list of people who are clinically extremely vulnerable, we have been inundated with calls, questions and stories that clearly illustrate the huge impact this decision is having on our community. […]

Getting back to the pool | Vinay’s blog

Now that I am swimming I have to get used to a new system. I have to have my trunks on before I got to the swimming pool under my clothes. Then I take my clothes off and get straight into the pool. After I finish swimming I can use the changing room. I want […]

4th annual report of The Learning Disabilities Mortality Review Programme (LeDeR) published

The DSA will be closely following how the Department of Health and Social Care responds to the recommendations made in the 4th annual report of The Learning Disabilities Mortality Review Programme, published yesterday (16 July 2020). The LeDeR programme, established in 2015, aims to reduce early deaths and health inequalities for people with a learning […]

Lauren’s experience of coronavirus (Covid-19)

By Sarah, Lauren’s Mum In addition to having Down’s syndrome, in her teens Lauren was diagnosed with severe verbal dyspraxia and ASD with significant oppositional behaviour and demand avoidance. These diagnoses removed the stigma from us of “failing parents” and opened doors to get the right level of support. In August 2018  Lauren moved into […]

Vinay’s tips for exercising at home

Vinay, our colleague at the DSA, is very keen on exercise and health. He’s shared some top tips with us on how to keep fit and healthy at home. He first wrote this list for winter exercise, but it is just as important to stay active while we are being asked to stay at home. […]

Government announce mandatory learning disability training

The government has announced it will pilot and roll out mandatory learning disability training for all relevant NHS healthcare professionals. It comes in response to campaigning from ourselves and thousands of others following grave concerns about the widely recognised health inequalities experienced by individuals with a learning disability. Read the ‘Right to be heard’ report […]

New NICE guidance on growing older

Earlier this year, the DSA was pleased to be involved in shaping new guidance around growing older with a learning disability. We responded to a National Institute for Clinical Excellence (NICE) consultation on developing new standards for services to adopt. These have now been published. It covers all settings where care and support is provided, […]