‘We are encouraged to hear permission has been granted for a judicial review to look at certain decisions made by the coroner at the inquest in to the death of Jacqueline Maguire who had Down’s syndrome. The Down’s Syndrome Association has ongoing and serious concerns about the premature deaths of people with Down’s syndrome. We […]
Here is a summary of the findings of a research study, looking at sleep problems in adults, which was supported by the DSA. A big thank you to all of our members who took part in this valuable study. By Dr Rebecca Stores, University of Portsmouth. Background Sleep disturbance is common and can have harmful […]
If you are on a low income you may be able to get help with healthcare costs: free prescriptions help with fares to hospital help with paying for glasses help with paying dentist’s fees help with the cost of wigs and fabric supports All children under 16, or under 19 and in full time education, […]
The PCHR Insert is one of the tools that can be used to help you and health professionals ensure your child’s health is monitored properly.
Staff from our Information & Training team and WorkFit are learning lots and meeting some amazing people at the World Down Syndrome Congress in Glasgow. Here is a brief summary of the talks they attended and gave on Day 1 of the Congress. Sex and Relationship Education for People with Down’s Syndrome – from adolescence […]
Scientists are a step closer to understanding which genes are responsible for early onset Alzheimer’s disease in people with Down’s syndrome
Landmark new genetic testing has been developed to detect signs of a potentially fatal condition that can develop into full blown leukaemia in children with Down’s syndrome. Early intervention greatly increases survival chances for children who develop symptoms. All children with Down’s syndrome will receive a blood test within three days of birth to identify […]
Grant will support the creation of new resources to support people with Down’s syndrome and dementia, their families and carers
By Carol Boys, Chief Executive At the end of last year, we shared an update about our World Health Organisation (WHO) Guidance project. I thought it was worth revisiting that topic today to update you all on the progress that has been made. Background Many years ago, the DSA campaigned for better healthcare for people […]
We were very pleased to be asked for our input last year with the production of some resources to help professionals ensure they are providing a high quality service to people with diabetes and a learning disability. Our information team contributed to the following resources: Top tips for practitioners: Talking to people with a learning […]
