Lauren’s experience of coronavirus (Covid-19)

By Sarah, Lauren’s Mum In addition to having Down’s syndrome, in her teens Lauren was diagnosed with severe verbal dyspraxia and ASD with significant oppositional behaviour and demand avoidance. These diagnoses removed the stigma from us of “failing parents” and opened doors to get the right level of support. In August 2018  Lauren moved into […]

Vinay’s tips for exercising at home

Vinay, our colleague at the DSA, is very keen on exercise and health. He’s shared some top tips with us on how to keep fit and healthy at home. He first wrote this list for winter exercise, but it is just as important to stay active while we are being asked to stay at home. […]

Government announce mandatory learning disability training

The government has announced it will pilot and roll out mandatory learning disability training for all relevant NHS healthcare professionals. It comes in response to campaigning from ourselves and thousands of others following grave concerns about the widely recognised health inequalities experienced by individuals with a learning disability. Read the ‘Right to be heard’ report […]

New NICE guidance on growing older

Earlier this year, the DSA was pleased to be involved in shaping new guidance around growing older with a learning disability. We responded to a National Institute for Clinical Excellence (NICE) consultation on developing new standards for services to adopt. These have now been published. It covers all settings where care and support is provided, […]

Health Alert! Campaign: Response to Government Consultation

Today sees the culmination of coordinated work across the DSA with the submission of our response to The Department of Health and Social Care consultation on mandatory learning disability training for health and care professionals. For a long while now we have been concerned about the variability in quality of healthcare individuals with Down’s syndrome […]

Statement on decision by High Court to permit judicial review into decisions made by coroner at the inquest into the death of Jacqueline Maguire

‘We are encouraged to hear permission has been granted  for a judicial review to look  at certain decisions made by the coroner at the inquest in to the death of Jacqueline Maguire who had Down’s syndrome.  The Down’s Syndrome Association has ongoing and serious concerns about the premature deaths of people with Down’s syndrome. We […]