Statement on decision by High Court to permit judicial review into decisions made by coroner at the inquest into the death of Jacqueline Maguire

‘We are encouraged to hear permission has been granted  for a judicial review to look  at certain decisions made by the coroner at the inquest in to the death of Jacqueline Maguire who had Down’s syndrome.  The Down’s Syndrome Association has ongoing and serious concerns about the premature deaths of people with Down’s syndrome. We […]

NHS fees and exemptions

If you are on a low income you may be able to get help with healthcare costs: free prescriptions help with fares to hospital help with paying for glasses help with paying dentist’s fees help with the cost of wigs and fabric supports All children under 16, or under 19 and in full time education, […]

World Down Syndrome Congress: Day 1 Summary

Staff from our Information & Training team and WorkFit are learning lots and meeting some amazing people at the World Down Syndrome Congress in Glasgow. Here is a brief summary of the talks they attended and gave on Day 1 of the Congress. Sex and Relationship Education for People with Down’s Syndrome – from adolescence […]

All newborn children with Down’s syndrome should receive leukaemia test under new guidelines

Landmark new genetic testing has been developed to detect signs of a potentially fatal condition that can develop into full blown leukaemia in children with Down’s syndrome.  Early intervention greatly increases survival chances for children who develop symptoms. All children with Down’s syndrome will receive a blood test within three days of birth to identify […]

Cardiac care guidelines

By Carol Boys, Chief Executive At the end of last year, we shared an update about our World Health Organisation (WHO) Guidance project. I thought it was worth revisiting that topic today to update you all on the progress that has been made. Background Many years ago, the DSA campaigned for better healthcare for people […]

New diabetes resources

We were very pleased to be asked for our input last year with the  production of some resources to help professionals ensure they are providing  a high quality service to people with diabetes and a learning disability. Our information team contributed to the following resources: Top tips for practitioners: Talking to people with a learning […]