Earlier this month you may have heard about the Down Right Beautiful photographic project by Nicole Louise Photography. Hayley is mum to Aaron, who is one of the children photographed, and we asked her to tell us a little bit more about how she got involved: I first heard about Nicole’s “Down Right Beautiful” project […]
For expert advice on social care commissioning, personal budgets and housing and support options. We are delighted to welcome a new member to our team, Chris Watson. Chris provides specialist advice to parents, family members and practitioners about how to get the right support for an adult who has Down’s syndrome. Chris’s areas of knowledge […]
Staff from our Information & Training team and WorkFit are learning lots and meeting some amazing people at the World Down Syndrome Congress in Glasgow. Here is a brief summary of the talks they attended and gave on Day 1 of the Congress. Sex and Relationship Education for People with Down’s Syndrome – from adolescence […]
A guest post by Liz of Coraline and Us Liz and Kevin are parents to Coraline who is just coming up to her first birthday. Liz writes a beautiful blog called Coraline and Us. You can also find the family on Facebook and Instagram. As Liz puts it on her About Us page, after Coraline […]
Glasgow is getting set to host the 13th World Down Syndrome Congress, a global event attended by over 1200 families and people with Down’s syndrome, as well as health care practitioners, education professionals and experts at the forefront of research and best practice in the care and development of people with the condition. Hosted by […]
During Down’s Syndrome Awareness Week 2018 we shared a series of blogs written by grandparents celebrating their relationships with their grandchildren. Read all the blogs… Mike Jenny Carena Shirley Lucy Diane Simone Resources for Grandparents Tea at Grandma’s – the third book in the Looking Up series published by the Cornwall Down’s Syndrome Group […]
Being able to communicate our needs, wishes and feelings is important for our sense of identity and our wellbeing. Making meaningful choices and developing friendships with the people we chose enables us to feel valued and increases our confidence and self-esteem. Conversely a lack of choice and control over our daily lives can lead to […]
We often receive calls to our Helpline from concerned parents and carers regarding self-talk by a person with Down’s syndrome they care for. When a person with Down’s syndrome begins talking to themselves, this can cause anxiety for many parents and carers. Some may be worried about mental health problems, onset of psychosis, or distress. […]
By Jane Mcilveen, Ruth Thomas and Sara Pickard Jane, who is our Development Officer in North Wales, introduces the experiences of two people with Down’s syndrome speaking Welsh and English… I have worked for the DSA in North Wales for five years. I moved here from England in 1998. I knew people spoke Welsh in […]
An edited list of links to useful resources from other organisations: New EHCP animations from Independent Support With support from DfE, Independent Support has produced two short animation films, which can be used by local authorities, front-line services, professionals and parent groups in their communications with parents and young people. They explain the Education, Health […]
