Today sees the culmination of coordinated work across the DSA with the submission of our response to The Department of Health and Social Care consultation on mandatory learning disability training for health and care professionals. For a long while now we have been concerned about the variability in quality of healthcare individuals with Down’s syndrome […]
A Hertfordshire man is gearing up for a 10,000 mile motorcycle challenge in memory of his son Tom, who died when he was just seven years old. Richard ‘Dicky’ Barr will ride from London to Mount Everest, leaving the capital on 20th April, the day on which Tom would have turned 22. Tom had Down’s […]
Michele is married to Matthew and she has two children, Lois 9 and Elliot 7. Elliot has Down’s syndrome and they live in South London. This is her story… I can clearly remember the day I went for my 12 week scan. I’d told Matt not to bother taking time off of work, it was […]
Maxwell was born on World Down Syndrome Day 2014. Now as he turns five on March 21, his mum Molly tells us about Maxwell starting school and his journey into the next stage of his life. As this year’s WDSD theme is #LeaveNoOneBehind, Molly particularly talks about how Maxwell’s school makes sure every single student […]
By Harps Kaur When Saajan entered this world, much to our surprise, he came with a little something extra – he had Down’s syndrome. To say we were devastated is an understatement. The grief and sheer shock that washed over me bought with it a wave of deep devastation as my mind was clouded with […]
By Debbie Austin My 10 year old daughter Lucy has a dual diagnosis of Down’s syndrome and autism and when stressed, has behaviours that can be described as challenging. The ‘Leave No-one Behind’ theme for this year’s World Down Syndrome Day is most welcome. As the years go by and it becomes clear that autism […]
Margaret Hogan was horrified when teachers told her that 9 year old Shauna, her daughter who has Down’s syndrome, was a “health and safety risk” and not allowed to learn to swim like the rest of those in her class. Horrified, Margaret fought the decision and now 17 years later, Shauna has represented Great Britain […]
By Liz Arriens “You remember when you had the blood test for Down’s syndrome at 12 weeks, that was just a guide; it looks like your baby is exhibiting characteristics of Down’s syndrome. There are worse things.” This was how we learned Coraline had Down’s syndrome, two hours after she was born, from a paediatrician and […]
Christopher Diedo says photos do the talking for him. His first major public exhibition was seen by more than 3,000 visitors at the Mick Jagger Centre in Dartford, and he’s since shown off his skills at various galleries in London – including at the OXO Tower – as well as taking his talent overseas, showcasing […]
Lucia’s family got in touch to tell us about her life and this blog has been written from Lucia’s perspective. Hello, I’m Lucia and I have just turned two. I love signing Makaton to my brothers and sisters, and I know what I want! My family is Italian, and I am bilingual because I can […]
