Glasgow is getting set to host the 13th World Down Syndrome Congress, a global event attended by over 1200 families and people with Down’s syndrome, as well as health care practitioners, education professionals and experts at the forefront of research and best practice in the care and development of people with the condition. Hosted by […]
During Down’s Syndrome Awareness Week 2018 we shared a series of blogs written by grandparents celebrating their relationships with their grandchildren. Read all the blogs… Mike Jenny Carena Shirley Lucy Diane Simone Resources for Grandparents Tea at Grandma’s – the third book in the Looking Up series published by the Cornwall Down’s Syndrome Group […]
Being able to communicate our needs, wishes and feelings is important for our sense of identity and our wellbeing. Making meaningful choices and developing friendships with the people we chose enables us to feel valued and increases our confidence and self-esteem. Conversely a lack of choice and control over our daily lives can lead to […]
We often receive calls to our Helpline from concerned parents and carers regarding self-talk by a person with Down’s syndrome they care for. When a person with Down’s syndrome begins talking to themselves, this can cause anxiety for many parents and carers. Some may be worried about mental health problems, onset of psychosis, or distress. […]
By Jane Mcilveen, Ruth Thomas and Sara Pickard Jane, who is our Development Officer in North Wales, introduces the experiences of two people with Down’s syndrome speaking Welsh and English… I have worked for the DSA in North Wales for five years. I moved here from England in 1998. I knew people spoke Welsh in […]
An edited list of links to useful resources from other organisations: New EHCP animations from Independent Support With support from DfE, Independent Support has produced two short animation films, which can be used by local authorities, front-line services, professionals and parent groups in their communications with parents and young people. They explain the Education, Health […]
by Jackie Kelly, registered learning disability Nurse and Academic working at the University of Hertfordshire Hello, my name is Jackie Kelly I am a registered learning disability Nurse and Academic working at the University of Hertfordshire, (UH). For my PhD I am looking at sibling relationships where one child in the family has a learning disability. […]
An edited list of links to useful resources from other organisations
As part of the work that Public Health England are doing to improve information and training about screening tests, they are reviewing and updating the booklet Screening Tests for You and Your Baby. You can find the existing document on Gov.uk by clicking here. This is the booklet given to all pregnant women and provides […]
We are currently working on a new addition to our adult social care series. The new factsheet will help adults with Down’s syndrome (18+) and their supporters prepare for Needs Assessments and Carers Assessments in England. Local authorities complete Needs Assessments to work out how much care and support a person needs to live their day-to-day life. […]
