Life with Elizabeth…

Life with Elizabeth… a life of ups and downs Written and sent in by Elizabeth’s mum, Jane When Elizabeth was born – as soon as Elizabeth was born – I knew one day I would write about her life, our life as a family. To that end, I kept a diary and much correspondence relating […]

Charities help save family from deportation

Last year, the Down’s Syndrome Association (DSA) was contacted by Rotherham Organisation for Down Syndrome (RODS) as one of their members, who was from Albania, was being threatened with deportation. Arben and his family had come to the UK from Albania following threats to their lives after their son Amar was born with Down’s syndrome. […]

Time to end unfair tax on disabled people

The Down’s Syndrome Association (DSA) was delighted to hear about the successful High Court ruling against Norfolk County Council’s discriminatory charging policy, which forced adults with learning disabilities to pay more than they could reasonably afford towards the cost of their care. The ruling, which was brought about by the mother of a young person […]

Remembering Tilly Anne Davies

Tilly’s parents have asked us to publish these words on what would have been her second birthday, as a celebration of her life and memory.  Remembering our beautiful daughter Tilly Anne Davies 17.12.2018 – 13.11.2019  Our daughter Tilly died in November 2019 and was only 10 months old. It was a very sudden, unexpected death in […]

Challenging times

by Carol Boys, Chief Executive, Down’s Syndrome Association Since Tuesday, when we shared the Government’s decision to add adults who have Down’s syndrome to the list of people who are clinically extremely vulnerable, we have been inundated with calls, questions and stories that clearly illustrate the huge impact this decision is having on our community. […]

Mum launches new language cards

New mum Becca approached us as she has designed a range of digital social media cards. She wants to help share with people the terminology she would like to see used when talking about her son Arthur. The cards are available on our website for people to download and use to help spread the word. […]

Planning for your child’s return to school

Down's syndrome

We are understandably getting many calls from parents asking for advice to support them in making decisions about their child returning to school in September. We understand that this prospect may raise many questions for you and will differ depending on the particular needs of your child and the setting they attend. We thought it […]

We won! WorkFit film wins ‘Charity Film of the Year’

We wanted our WorkFit film ‘When I Grow Up…’, to change people’s attitudes towards employing someone with Down’s syndrome. It was a collaboration with internet sensations Ollie and Cameron. It shows the seven-year-old identical twins testing out jobs at the fire service, a café, hairdressers and supermarket, and promotes the message that children with Down’s syndrome should […]

Meet Mercy and her Big Sister, Hannah

Hannah is a 22 year old Fashion Media and Promotion student who has just finished university. Her final project was inspired by her little sister, Mercy… “My main inspiration for this project came from my youngest sister, Mercy, who is a nine year old fashion-lover who has Down’s Syndrome. I planned to create a ‘Young […]