For Families and Carers : Development

Girl with Down's syndrome wearing pink hat

Early Support

This is a guide for parent carers with children and young people who have Down’s syndrome.

In this guide you will find information on:
• Down’s syndrome
• how Down’s syndrome may affect you and your child
• where to go for further support and information

You may not want to read this guide all at once; you may find it more useful to refer to different sections over time. This information is freestanding, but you may want to use it alongside other
Early Support resources. The guide was developed by the Down’s Syndrome Association (DSA) for Early Support, in consultation with families and practitioners. The original version was developed by Down Syndrome Education International and the Down’s Syndrome Association in consultation with families and professionals.

Down’s syndrome and Down syndrome are different names for the same condition and you will
hear people use both terms. For simplicity, this resource uses Down syndrome throughout.

For more information, or call our helpline on 0333 1212 300.

What's New

  • Riding high: Super Steve reaches the top of the world!

    He took a trusty Royal Enfield Bullet motorbike and rode it along some of the most challenging terrain in the high passes of the Himalayas in India.…

  • Happy 75th birthday George!

    We were recently sent these gorgeous photos of George McCullagh, from Northern Ireland, celebrating his 75th birthday last month!…

  • New NICE guidance on growing older

    Earlier this year, the DSA was pleased to be involved in shaping new guidance around growing older with a learning disability. We responded to a National Institute for Clinical Excellence (NIC…