Resources from the DSA

Easy read documents

Coronavirus
What is it? How to stay safe

We have developed an easy read guide about coronavirus which you can download here.

It is designed to help people who have Down’s syndrome to understand cornonavirus and know what to look out for.

It covers what coronavirus is, how to stay safe, what symptoms to look out for, and what to do if you have any of the symptoms.

Social distancing

This easy read guide explains what social distancing is and how it might affect a person with Down’s syndrome.

Download the easy read document here.

 

 

 

The Government are sending a letter to every house in the country about the current situation. KeepSafe.org.uk have created an easy read version of the letter which you can read here.

Public Health England (PHE) have published an easy read document that explains the rights of people who have a learning disability, autism or both and how they should be treated by medical staff during the the coronavirus pandemic.

Benefits and financial help

Our Benefits Advisor has pulled together some key information about the current benefits situation and the financial help that is available.

All the information is on this page or you can download a pdf by clicking here.

As with our other resources, we’ll be updating this as information becomes available so follow us on social media or check out the Latest news page.

Adult support and social care

Chris Watson, our specialist adviser in adult social care and support, has shared some advice on how the current situation may affect adult support and social care.

All the information is on this page.

As with our other resources, we’ll be updating this as information becomes available so follow us on social media or check out the Latest news page.

Resources for parents, carers and supporters

A reminder to look after ourselves
For parents, carers and supporters.

This short document has been adapted from our forthcoming Emotional well-being series.

The document’s key message is: be kind to yourself…if you don’t look after yourself, it can make it harder to support someone else’s emotional well-being.

You can download the publication here or by clicking on the image to the right.

 


Supporting young people and adults through times of change
For parents, carers and supporters

We are all living with change and a certain degree of uncertainty at the moment.

We know that sameness and predictability can help people with Down’s syndrome to feel secure and in control. However, many people’s daily lives and routines have recently been, or will be, disrupted.

We thought it would help you as parents, carers and supporters to put together some ideas that may help you to support people who have Down’s syndrome at this time of change.

You can download the publication here or by clicking on the image on the right.


While most people with Down’s syndrome are unlikely to be admitted to hospital for complications arising from coronavirus, we think it is best to be prepared in the event that your loved one is admitted to hospital at short notice.

We have put together some suggestions together to help you to think about it. Click here to download the factsheet on the image to the right.

 

 

Useful articles from The Journal

In the most recent article of The Journal (141, Spring/Summer 2020) we published two articles by members of the DSMIG which are particularly relevant at the moment.

Preventing infection in children with Down’s syndrome
by Dr Liz Marder, Counsultant Paediatrician, Community and Neurodisability, and Information lead / Web Editor, Down Syndrome Medical Interest Group,UK and Ireland.

Recognition of Serious Illness in Children with Down’s syndrome
by Dr Liz Herrieven, Consultant in Paediatric Emergency Medicine (and mother to Amy, 13, who happens to have Down’s syndrome)

You can download both articles here.