About Down's Syndrome : Health Care

The Down’s Syndrome Association believe that all people with Down’s syndrome should get the health care they need as individuals.

We continue to campaign for better health care in the UK for people with Down’s syndrome.

We are currently working together with an international team of medical experts on guidelines to support the health of people with Down’s syndrome, by creating evidence-based clinical guidelines for specific medical issues which greatly impact this population. We will campaign to have these guidelines accepted by the World Health Organisation (WHO) which will then make them mandatory in the UK as well as round the world.

We are updating the information available to health professionals and have recently developed a forum specifically for health care professionals to talk to us and others with expertise in Down’s syndrome to share good practice and ask questions.

Families and carers will find lots of support and information on health and well-being online. We also have a section for GPs that contains information about health conditions that are more common in people with Down’s syndrome. You may also find our information sheet Eliciting a Case History useful.

Please refer to the following website for health care information specifically for people with Down’s syndrome – Down’s syndrome Medical Interest Group Website.

What's New

  • More than 500 downloads for DSActive Health Swap app

    A new app designed to help people with Down’s syndrome make healthier eating and exercise choices, has been downloaded more than 500 times in its first three weeks. Created by our <a href="http…

  • New NICE guidance on growing older

    Earlier this year, the DSA was pleased to be involved in shaping new guidance around growing older with a learning disability. We responded to a National Institute for Clinical Excellence (NIC…

  • We know the secret to a happy marriage

    Tommy and Maryanne Pilling say they know the secret to a happy marriage – “I love my Tommy, he is my husband. We do lots of things together and he is my best friend”. The couple have jus…