If you are a student looking for further information for your essay or project, the DSA has a number of resources which you may find helpful. Please take look at the list of resources below.
You can find basic information about Down’s syndrome in our What is Down’s syndrome? section. If you want to read about the lives of people with Down’s syndrome today, take a look at the Down2Earth magazine. This is a magazine written by and for people with Down’s syndrome and you can download past copies here. There are also a selection of life stories written by people with Down’s syndrome you can read here.
The Early Support booklet is a guide for parent carers with children and young people who have Down’s syndrome, but it is also useful for general reference. It provides information on: Down’s syndrome; how Down’s syndrome may affect parent carers and their child; and where to go for further support and information. The booklet covers infancy to early adulthood (references to social care and education law in this resource may be out of date – please contact the DSA for advice).
The DSA’s Celebrating Success series covers good practice stories of inclusion for pupils with Down’s syndrome from early years to further education.
The Education Primary Support Pack and the Education Secondary Support Pack are designed to help teachers and other education professionals understand the specific learning profile of students with Down’s syndrome.
For further information on education, see our Education section.
For our position on pre-natal testing, see our policy statements.
If you would like to know more about pre-natal testing, take a look at our Pre-Natal FAQs.
The DSA has produced a Health Series of 14 booklets. These booklets cover a range of medical conditions that can affect people with Down’s syndrome.
The DSA has a webpage for GPs on medical issues that can commonly affect people with Down’s syndrome. We have also produced a Health Book for adults with Down’s syndrome to take to their Annual Health Checks. You can also find out more about our Better Health Care for adults with Down’s syndrome campaign.
For further information on health, please look at the Health section on our website.
Speech and language
The DSA Communication Series resources, co-written with a speech and language therapist, offer practical tips and activities for supporting children and young people with Down’s syndrome to develop their communication skills. The series includes resources for supporting communication, language and speech development and can be used by families and professionals alike.
A 2014 research paper has indicated that children with Down’s syndrome may not compensate for early episodes of glue ear as easily as children who do not have Down’s syndrome or overcome its effects on speech and language development. You can find out more about the research paper here: Summary of Early Hearing Loss and Language Abilities in Children with Down’s Syndrome Research by Glynis Laws and Amanda Hall.
You can find historical information on the social history of learning disability on the Langdon Down Museum website
The DSA has a research page on current and on-going research projects related to Down’s syndrome.
If you are a researcher and you are looking for participants, please look at our information for researchers page.
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