About Down's Syndrome : Current Surveys

Keep an eye on our social media pages for the latest DSA surveys and research questionnaires.

For more information please contact us.


Getting help when you need it – a parent/carer consultation about technology

Hi I am Eve Hutton I am a Reader in Children’s Health and Wellbeing at Canterbury Christ Church University and a children’s occupational therapist. I am involved in several research projects that focus on children with additional needs and their parents and carers.

Parents/carers we have consulted say that technology may help with the everyday challenges of caring for a child/young person. We would like to find out what idea’s parents/carers have about this. We are also interested in parent/carer views and the potential of digital technology and communication when their child is receiving therapy (OT, PT, SALT).

We are inviting you to complete a short on- line survey. The survey asks questions about how parents and carers use technology- such as phones, computers and tablets-to help them in their role as a carer of a child/children who use/s occupational therapy, speech and language therapy or physiotherapy services.

https://canterbury.onlinesurveys.ac.uk/getting-help-when-you-need-it-a-parent-and-carer-consult 

We are sending this out through special schools, online support forums and networks. The survey has 24 questions. The collective results will be used to help develop our understanding about how parent/carers might use technology so we can develop a research project about technology for parents and carers and apply for funding for this. The survey results may also be used in a research publication such as a journal article. We will not ask for your name or any personal identification in this survey and will not use any identifying information in any report, article or other document.
Thank you for helping us with our research.

If you have any questions about this survey please email: Eve.hutton@canterbury.ac.uk


The impact of sleep apnoea on people with Down’s syndrome

The American organisation LuMind has asked us to share their survey:

Help LuMind IDSC Foundation gain a better understanding of the impact sleep apnea has on people with Down syndrome and their caregivers!

𝐖𝐞 𝐚𝐫𝐞 𝐬𝐞𝐞𝐤𝐢𝐧𝐠 𝐚𝐭 𝐥𝐞𝐚𝐬𝐭 𝟓𝟎𝟎 𝐩𝐚𝐫𝐞𝐧𝐭𝐬 𝐚𝐧𝐝 𝐜𝐚𝐫𝐞𝐠𝐢𝐯𝐞𝐫𝐬 𝐨𝐟 𝐩𝐞𝐨𝐩𝐥𝐞 𝐰𝐢𝐭𝐡 𝐃𝐨𝐰𝐧 𝐬𝐲𝐧𝐝𝐫𝐨𝐦𝐞 𝐚𝐧𝐝 𝐬𝐥𝐞𝐞𝐩 𝐚𝐩𝐧𝐞𝐚 𝐟𝐨𝐫 𝟏𝟓 𝐦𝐢𝐧𝐮𝐭𝐞𝐬 𝐭𝐨 𝐜𝐨𝐦𝐩𝐥𝐞𝐭𝐞 𝐭𝐡𝐢𝐬 𝐬𝐮𝐫𝐯𝐞𝐲 𝐨𝐧 𝐭𝐡𝐞𝐢𝐫 𝐤𝐧𝐨𝐰𝐥𝐞𝐝𝐠𝐞 𝐨𝐟 𝐬𝐥𝐞𝐞𝐩 𝐚𝐩𝐧𝐞𝐚 – 𝐝𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬, 𝐭𝐫𝐞𝐚𝐭𝐦𝐞𝐧𝐭 𝐨𝐩𝐭𝐢𝐨𝐧𝐬, 𝐚𝐧𝐝 𝐜𝐨𝐦𝐩𝐥𝐢𝐚𝐧𝐜𝐞 – 𝐭𝐨 𝐞𝐯𝐚𝐥𝐮𝐚𝐭𝐞 𝐭𝐡𝐞 𝐢𝐦𝐩𝐚𝐜𝐭 𝐜𝐚𝐫𝐞 𝐦𝐚𝐧𝐚𝐠𝐞𝐦𝐞𝐧𝐭 𝐡𝐚𝐬 𝐨𝐧 𝐟𝐚𝐦𝐢𝐥𝐢𝐞𝐬.

All personal identifiable information (PII) in this survey will be de-identified from the survey results. The survey results will be shared broadly at Down syndrome conferences, with key Down syndrome research organizations, online communities, and published in a peer-reviewed journal.

𝐁𝐲 𝐩𝐚𝐫𝐭𝐢𝐜𝐢𝐩𝐚𝐭𝐢𝐧𝐠 𝐢𝐧 𝐭𝐡𝐢𝐬 𝐬𝐮𝐫𝐯𝐞𝐲 𝐚𝐧𝐝 𝐩𝐫𝐨𝐯𝐢𝐝𝐢𝐧𝐠 𝐲𝐨𝐮𝐫 𝐞𝐦𝐚𝐢𝐥 𝐚𝐝𝐝𝐫𝐞𝐬𝐬, 𝐲𝐨𝐮 𝐰𝐢𝐥𝐥 𝐛𝐞 𝐞𝐧𝐭𝐞𝐫𝐞𝐝 𝐭𝐨 𝐰𝐢𝐧 𝐨𝐧𝐞 𝐨𝐟 𝐭𝐡𝐫𝐞𝐞 $𝟓𝟎 𝐀𝐦𝐚𝐳𝐨𝐧 𝐠𝐢𝐟𝐭 𝐜𝐞𝐫𝐭𝐢𝐟𝐢𝐜𝐚𝐭𝐞𝐬.

https://www.surveymonkey.com/r/OSALuMind (English)

https://es.surveymonkey.com/r/LuMindesp (Spanish)

If you have any questions or concerns about this survey please feel free to email the staff at LuMind IDSC at LuMindIDSC@lumindidsc.org or Cincinnati Children’s Hospital ORCRA@cchmc.org

 

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