About Down's Syndrome : Validating a Novel Visual Processing Questionnaire in neurodiverse children and young people

Can you help with this study?

The aim of this study is to develop a new questionnaire for parents and carers (the ViPro) to find out more about visual processing behaviours in neurodiverse children and young people.

The research team hope that identifying differences in visual processing could increase understanding of the pathway from basic vision to behaviour, and aid in identification of difficulties or differences in sensory processing.

The team are looking for parents of children between the ages of 4 and 15 years to fill out a 20-minute online questionnaire.

Your child does not have to have a neurodevelopmental condition (e.g. autism spectrum condition, attention deficit hyperactivity disorder, or epilepsy) for you to take part.

For further information, and to fill out the questionnaire, please click on this link:

https://kclbs.eu.qualtrics.com/jfe/form/SV_0eMpnQaQ6A2t36t.

If you have any question, please contact Jacqueline Nonweiler:

Jacqueline.nonweiler@kcl.ac.uk

Background

Children who have Down’s Syndrome have higher rates of visual difficulties, and some also experience additional neurodevelopmental conditions such as autism spectrum condition (ASC) or attention deficit hyperactivity disorder (ADHD).

Children who have ASC or ADHD often have differences in sensory processing, such as sensory seeking (e.g. showing a fascination with shiny surfaces and busy patterns) or avoidance (e.g. having a strong preference for shady over brightly lit spaces).  How children process sensory information can have a significant impact on their daily functional skills, play, social interactions and emotional well-being.  A toddler, for example, who is hypersensitive to touch may be reluctant to engage in messy play, while a teenager who is hypersensitive to sound may become very anxious at a noisy party.

The Research Team

Michael Absoud is a Consultant at Evelina London Children’s Hospital and a Senior Clinical Lecturer at King’s College London Department of Women and Children’s Health, Life Course Sciences. His research interests are neurodevelopmental disorders and health and population sciences.

Fiona Rattray is a PhD Student at the Centre for Social, Genetic and Developmental Psychiatry at King’s College London. She has significant experience working with the neurodiverse population and is particularly interested in the neural underpinnings of vision in neurodevelopmental conditions.

Jacqueline Nonweiler is an MSc Mental Health Studies student at Institute of Psychology, Psychiatry & Neuroscience, King’s College London. She works as a Mental Health Assistant at the Newcomen Neurodevelopmental Centre at Evelina London Children’s Hospital.

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