About Down's Syndrome : The impact of poor motor ability on daily living skills and independence in Down’s syndrome and Williams syndrome

This study is interested in finding out about motor ability and how this is related to daily living skills and anxiety in Down’s syndrome and in Williams syndrome.

It has been found in previous research that individuals with Williams Syndrome and Down’s syndrome often show motor difficulties and high levels of anxiety, and the researchers would like to find out more about how this low motor ability and high level of anxiety is impacting ability to take part in activities of daily living, such as getting dressed, cooking and personal hygiene, in these groups.

The researchers hope that the results of this study can be used to inform future research and interventions aimed at improving independence and quality of life. They are recruiting all over the UK and the research can take pace in their labs in London or in your own home.

Leighanne is looking to recruit 20 people with Down’s syndrome (aged 10-35) and their parents in the London, Manchester and Liverpool areas. Participants will have the option to visit UCL for tests/assessments if they wish (expenses paid)

People with Down’s syndrome will be asked to take part in a face to face assessment whilst doing daily living activities and wearing a wristband heart monitor. Parents will be asked to complete questionnaires

You can download the Participant Information Screen here.

To find out more about this research study, please contact:

Leighanne Mayall: leighanne.mayall.14@ucl.ac.uk 

Emily Farran: e.farran@surrey.ac.uk

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