About Down's Syndrome : Sleep Problems in Adults with Down’s Syndrome

portsmouthuniversityBackground

Sleep disturbance is common and can have harmful psychological and physical effects. People with a learning disability are at a particularly high risk. While sleep disturbance in children with Down’s syndrome has received a reasonable amount of attention, relatively little has been written about adults with Down’s syndrome, especially those of an older age.

A sleeping adultTypes of sleep problems

Virtually all sleep problems which occur in the general population are seen in individuals with Down’s syndrome and other learning disabilities. There are no sleep problems which are specific to such individuals. However, people with Down’s syndrome may be particularly prone to certain types of sleep disturbance.

Some sleep problems have a physical cause, others have a behavioural or psychological basis. Possible sleep problems in adults with Down’s syndrome include insomnia and behavioral or psychological sleep problems, sleep disordered breathing (especially obstructive sleep apnoea or OSA) and parasomnias (unusual behaviours during sleep).

Previous research

The limited amount of research that has already been conducted on adults with Down’s syndrome has tended to focus on a fairly limited number of sleep problems. High rates of sleep disordered breathing, especially OSA, are reported in adults with Down’s syndrome, but other sleep disorders tend to have been ignored or are referred to only vaguely. It is important to obtain information on the wide range of possible sleep problems to have a better understanding of the area.

New research study

With these issues in mind, we are carrying out a new research study on sleep in adults with Down’s syndrome. This research aims to:

  1. Describe the range of sleep disorders in adults with Down’s syndrome and how common they are from the perspective of family carers;
  2. Explore associations between sleep disorders and general health and wellbeing;
  3. Explore the experiences of family carers in dealing with sleep disorders; and
  4. Obtain information from adults with Down’s syndrome themselves about their sleep.

How do I take part in the research?

The research consists of two separate surveys, one for family carers of adults with Down’s syndrome and the other for adults with Down’s syndrome themselves.

For carers, it should take around 20-30 minutes to complete the survey and 10 minutes for adults with Down’s syndrome.

It is hoped the findings will help highlight the importance of sleep in adults with DS for clinical practice and further research.

The link for the survey for family carers of an adult with Down’s syndrome (aged 16 years or older) is:

https://portsmouth.onlinesurveys.ac.uk/survey-for-family-carers-on-sleep-in-adults-with-downs-sy-2

The link for the survey for adults with Down’s syndrome (aged 16 years or older) is:

https://portsmouth.onlinesurveys.ac.uk/survey-on-sleep-for-adults-with-downs-syndrome-pilot-f

If you have any questions, please contact:

drrebeccastoresDr Rebecca Stores

Senior Lecturer
School of Health Sciences and Social Work (SHSSW)
University of Portsmouth
Tel: 023 9284 4425

Email: rebecca.stores@port.ac.uk.


Rebecca Stores is a Senior Lecturer at the School of Health Sciences and Social Work at the University of Portsmouth. She has carried out previous research on sleep disorders and psychological functioning in specific groups including children with Down’s syndrome and other forms of learning disability.