About Down's Syndrome : Parental intention to support the use of computerized cognitive training for children with genetically defined neurodevelopmental disorders

Parental intention to support the use of computerized cognitive training for children (age 0 to 18 years)  with genetically defined neurodevelopmental disorders

Researcher

Dr Nigel Robb is undertaking this post-doctoral research study in collaboration with a research fellow at the University College Cork, Ireland.  His research interests include video games, including applied (‘serious’) games; human-centred design, particularly the design of software for people with intellectual disabilities; and philosophical theories of learning and concept acquisition.

Outline of the research

Children with genetically defined neurodevelopmental disorders (NDDs) such as Down syndrome, Prader-Will syndrome, and Fragile X syndrome may show a range of cognitive impairments, including impairments in executive functioning.[1] Executive functions are related to general intelligence, academic achievement, literacy, and mathematical skills, while executive function deficits are related to a variety of clinically and socially important behaviours.[2] Recent research on the effects of commercial brain training programmes and video games suggests that executive functioning can be improved through training, both in typical adults and in children with NDDs; such computerised cognitive training (CCT) therefore represents a potentially viable and affordable intervention for children with NDDs.[3] For CCT to be effective, it is important that an appropriate training regimen is followed; one widely used CCT programme assigns a coach to trainees, to provide motivation.[4] Since children are likely to engage with this training at home, the intentions of their parents to support them in this training are therefore important. However, no research has systematically investigated the attitudes of parents of children with NDDs to CCT. The aim of this study is to investigate the intentions of parents of children with genetically defined neurodevelopmental disorders to support their children in the use of CCT

What is involved?

The completion of a quick online survey

If you are a parent of a child with Down’s syndrome (aged 0 to 18 years) and you would like to take part, please fill out the survey at this link:

https://goo.gl/forms/tAu3ukcdwFpO9BoA3

If you have any questions about this research study, please email Dr Nigel Robb  nigel.robb@ucd.ie

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