About Down's Syndrome : Evaluating the quality of education, health and care plan outcomes for primary school students who have Down’s syndrome in England.

Can you help with this study?

Camilla Brooks (Department of International Special Needs Education, University of Oslo) is recruiting families of children (ages 5 to 12 years) who attend either a mainstream or special primary school in England only and who have an Education, Health and Care Plan (EHCP).

If you decide to take part, you will need to send Camilla a copy of your child’s most recent EHCP.

Camilla will systematically examine the children’s most recent ECHP in order to evaluate the quality of their outcomes and provide further evidence of the importance of high-quality outcomes in regard to student success.

There is further information about the study and how to take part in the parent information letter and infographic. The participation and consent form is here.

To take part in the study, please click on this link: Evaluating the Quality of Education, Health and Care Plan outcomes for primary school students with Down syndrome in England – Nettskjema

If you have any questions you can email Camilla using camiljb@student.uv.uio.no

You can also find more information on their Facebook group page. 

Camilla hopes her study will benefit children who have Down’s syndrome and their families as follows:

‘Since the introduction of the Education, Health and Care Plan (EHCP) in 2015, there has been no official investigation into the quality of the educational outcomes for students with Down syndrome. The first evaluation of outcome quality for students with special educational needs and disabilities was conducted in 2019 by Susana Castro, Catarina Grande and Olympia Palikara (Evaluating the quality of outcomes defined for children with Education Health and Care plans in England: A local picture with global implications), however, in this study they coded students with Down syndrome into the “other” category and thus drew no conclusions specific to the Down syndrome community. This study will shed light on the overall quality, strengths and weaknesses of EHCP outcomes specific to primary school students with Down syndrome. The findings of this study can be used to further inform and guide policy guidelines, outcome planning and writing tools for educators and professionals responsible for writing, implementing and assessing students according to their EHCP outcomes; which will serve to improve education quality and function for students with Down syndrome.’

Researcher Information

Camilla Brooks obtained a Bachelor’s Degree in Special Education and teaching certificate from the University of Kentucky in the USA in 2018. In 2019, she began pursuing her Master’s degree in International Special Needs Education from the University of Oslo, Norway. For her Master’s thesis with the supervision of Kari-Anne Bottegaard Næss and Kelly Burgoyne, she is conducting this research project.

Dr Kari-Anne Botteegaard Næss is a professor in the Department of Special Needs Education at the University of Oslo, Norway and is a supervisor for this project. Her research areas focus on communication and language development, children with Down syndrome and communication, technology and language interventions. More information about Kari-Anne can be found at: https://www.uv.uio.no/isp/english/people/aca/kariabn/index.html

Dr Kelly Burgoynge is a lecturer in Human Communication, Development and Hearing at the University of Manchester and is a supervisor for this project. Kelly obtained a 1st class Honours degree in Psychology from the University of Central Lancashire in 2003 and remained there until 2007 completing her postdoctoral research. Since her PhD research, Kelly has held four post-doctoral research positions in the UK (Down Syndrome Education International (DSEI) and University College London) and in Australia (Australian Catholic University). Her work includes large scale longitudinal studies of children’s development, and Randomized Controlled Trials of educational interventions. Kelly joined the University of Manchester in 2017 as a lecturer in the Department of Human Communication, Development and Hearing. More information about Kelly can be found at: https://www.research.manchester.ac.uk/portal/en/researchers/kelly-burgoyne(d34588d9-9639-4a9a-9791-cc9c0ad9b4e8).html


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