About Down's Syndrome : Celebrating our 50th anniversary

In February 1970 Rex Brinkworth began the organisation that is now known as the
Down’s Syndrome Association.


In the last 50 years, people with Down’s syndrome have made amazing strides forward. That’s why we want to make 2020, the DSA’s 50th anniversary, a year of celebration.

We’ll be celebrating the stories of people with Down’s syndrome who have lived, thrived and succeeded through the last 50 years.

We’ll also be celebrating the role that the Down’s Syndrome Association has played, and continues to play, in radically changing the landscape for people with Down’s syndrome… in education, health, employment and awareness, and understanding in society as a whole.

Are you someone with Down’s syndrome who is over 50?

Or do you know someone with Down’s syndrome in their 50s or over?

We want to hear your story! 

Please get in touch with us as we would love to hear from you… we want to know:

  • About your/their lives…childhood, growing up, adulthood and what life is like now;
  • What you/they love;
  • Your/their achievements and the challenges you/they may have faced and overcome;
  • The important people in your/their lives; and
  • What matters to you/them most
  • Name, age and where you/they currently live

If you are over 50 and have Down’s syndrome, or  if you know someone who has got a story to tell or would simply like to talk about their life over the past 50 years or so, email dsapress.office@downs-syndrome.org.uk and tell us a bit about yourself or them. Including a photo would also be excellent too!


We have lots of exciting plans up our sleeves for next year – check out other ways to get involved in our 2020 celebrations. 

What's New

  • Riding high: Super Steve reaches the top of the world!

    He took a trusty Royal Enfield Bullet motorbike and rode it along some of the most challenging terrain in the high passes of the Himalayas in India.…

  • Happy 75th birthday George!

    We were recently sent these gorgeous photos of George McCullagh, from Northern Ireland, celebrating his 75th birthday last month!…

  • New NICE guidance on growing older

    Earlier this year, the DSA was pleased to be involved in shaping new guidance around growing older with a learning disability. We responded to a National Institute for Clinical Excellence (NIC…