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My Sister Bobbie

A moving story of caring for a much loved sister by Howard Sutcliffe

Bobbie was born in 1946. She was slow in reaching the various stages of baby development, but the members of the family were not aware of any particular reason for this until, one day, a locum GP said “Has anyone spoken to you about your daughter? You do know Bobbie has Downs Syndrome, don’t you?” Of course, the term used then was Mongolism. Bobbie was eighteen months old, and our parents were then left alone to come to terms with the implications of this news.  

Bobbie with Mum

Through the combined efforts of an excellent teacher at a local school and the family Bobbie learned to spell and to read and write and even to touch type, although “sums” were always a problem. She became fascinated with words and she took pride in being able to spell difficult words with silent letters, for example pneumonia and rheumatism. Mother recalls a memorable occasion, years later, when Bobbie saw a nude male statue and in a loud voice exclaimed, “Oooh, pornographic”. Throughout her adult life her main relaxations were big jigsaws, which occupied the dining room table for weeks (you moved them at your peril), making lists of presents for her friends by copying entries from an Argos catalogue and visiting neighbours. In addition Bobbie would cut out coupons from newspapers and magazines complete them with the names and addresses of friends and, we discovered later, give these coupons in appropriately addressed envelopes to a dear neighbour who would affix a stamp and post them. Goodness knows how many people received free gifts and catalogues “out of the blue”! Also, Bobbie along with mother and father enjoyed caravanning and my sister became widely known to many other caravan-rally enthusiasts. 

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Brother of the Bride

My name is Emily, my brother is called Matthew, he is 34 and he has Down's syndrome. I have written a monologue entitled 'Brother of the Bride's Speech'.  Matthew preformed the monologue at the Terry O'Toole Theatre, North Hykeham, Lincolnshire on Sat Oct 16th 2010. The monologue was also entered it into a Lincolnshire Festival of New Writing competition, where it was chosen amongst others to be a winner.

The Brother of the Bride's Speech is a monologue based on a real event. Matthew the main character has Down's syndrome and is played by himself.  It is based on the speech he gave at my wedding. Although it has been lengthened the speech is mainly Matthew's own words and reveals much about the loving relationship he has with his family.

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My Sister, My Hero

I'd like to tell you about my sister Rebecca Jane Nicholls and more importantly why I owe her my life.

Rebecca was born on 30th June 1987, a third daughter for my parents, Wendy and Malcolm and a younger sister for Hannah and myself. Not knowing that Rebecca would be born with Downs was a massive shock for my family but it was also the fact that we didn't know anything about Down's syndrome that was daunting. It must have been a very worrying but happy time for my parents.

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My poem

I have been writing poetry for a number of years on different topics and have had a number of poems published, and recently I thought it would be good to turn my talent to writing poetry to inspire and motivate people.

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Why we did Capital to Coast

Early in 2004, my husband, Adam & I (Lisa) were already proud parents of 3 sons: Twins Lucas & Jordan (12 years old) and Mason (8 years old) but we had a little surprise due to us - I was pregnant for a third time and we were both thrilled!  We had obviously hoped to complete our family with a girl and were absolutely over the moon when the sexing scan had showed that, indeed, we were expecting just that - our first daughter!  Because I was 37 years of age, I had been given the serum blood test which was to establish any risk of Down's syndrome, Spina Bifida or the like, the results of which were over  250/1 chance of being affected and an amniocentisis was ruled out immediately, because the 'risk was so low'.  The pregnancy went really well and knowing our baby was a girl, we had no trouble in deciding on a name - Madison (after a beautiful little girl I had taught previously), Pamela (after my late mother) and Paige (a name we both loved).  A caesarian birth was booked for 22nd October (the day after daddy's birthday!

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