DSA News

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Down’s Syndrome Association is awarded a Heritage Lottery Grant

  • Thursday, 02 February 2012 11:32

We are delighted to announce that we have received a Heritage Lottery Fund, Your Heritage grant totalling £45,900 towards a 12 month project to deliver a permanent exhibition and programme of associated activities based around the work of James Henry Pullen called “Pullen: Ships of Reality and the Imagination”. The exhibition will be held in the exhibition space at the Langdon Down Centre in Teddington.

This exhibition will feature the artifacts made by James Henry Pullen (1835-1916), a resident of the Royal Earlswood Asylum near Redhill and believed to have had the condition of savant syndrome. Known as the Genius of Earlswood Asylum, Pullen created a series of ships including a model of Brunel’s paddle steamer the SS Great Eastern completed in 1872 and regarded by many as his greatest achievement. Another ship, the Princess Alexandra, is a 40-gun man of war completed in 1862.

Pullen’s life is a significant one in the history of learning disability and this exhibition will allow his story to reach a wider public while putting on permanent display these important historical artifacts.

The grant will enable the following:

  • install two of Pullen’s largest ships in display cases;
  • develop volunteering opportunities;
  • production of a short video about Pullen;
  • host a series of lectures about Pullen and learning disability;
  • host activities including drama and art events;
  • develop an education programme focussing on the life of Pullen.

The Down’s Syndrome Association is creating the Langdon Down Museum of Learning Disability and is currently working towards accredited museum status. The collections will be permanently open to the public from 28 January 2012. The exhibition Pullen: Ships of Reality and the Imagination will formally open to the public and launch its activities programme in the Summer of 2012.

Carol Boys, Chief Executive of the Down’s Syndrome Association says:

 “The DSA is elated to have received this significant grant funding from the HLF which will enable us to involve the local community in learning about the fantastic achievements of James Henry Pullen.  I invite you to come and visit our exhibition when it officially opens later this Summer”.

Sue Bowers, Head of Heritage Lottery Fund London said:

 “This project not only enables a wide range of people to learn more about the extraordinary abilities of Henry James Pullen, but they will also gain a deeper understanding of learning disabilities both in the past and in society today. Volunteers drawn from a local disability organisation will also have the chance to learn new life skills as they take part.”

 For further information please contact Ian Jones-Healey from the DSA on 0208 614 5100 or at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

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Defeat Dementia in Down's Syndrome Study

  • Thursday, 26 January 2012 10:48

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We are conducting a study based at the Cambridge Intellectual and Developmental Disabilities Research Group (www.CIDDRG.org.uk), in partnership with the Down’s Syndrome Association (DSA) and the Wolfson Brain Imaging Centre (WIBC) Cambridge, to investigate the risk of dementia in people with Down’s syndrome (DS). This four year study is funded by the Medical Research Council (MRC). We believe that a chemical (protein) in the brain called beta amyloid may be a key factor in causing dementia of the Alzheimer’s type, and that people with DS may be more vulnerable to this type of dementia as they have more of this protein in their brains (the gene for the protein is on chromosome 21, which is inherited in triplicate in people with Down’s syndrome). If excess beta amyloid is found to be an important factor, then medications being developed to reduce beta amyloid deposition in the brain could possibly prevent dementia developing. This study will use new brain scanning techniques to look at the amount of beta amyloid in the brain and whether it is associated with brain changes and the symptoms of dementia.

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Free Education Primary & Secondary Stage Conference In Wales

  • Monday, 23 January 2012 16:58

FREE! Conference

On: Monday 27th February 2012

At:  The Future Inns Hotel, Hemmingway, Cardiff Bay CF10 4AU

A conference with workshops focused on primary & secondary stages. 

Places are limited, so please book  early to avoid disappointment.

All Booking Forms  MUST be submitted by Tuesday 21st February.

Please return booking form via email : Julian Hallett  This e-mail address is being protected from spambots. You need JavaScript enabled to view it .  If you have any queries please ring on 02920 522511 or 07834 987 421

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December 10th is Human Rights Day

  • Friday, 09 December 2011 13:57
 

Many voices are coming together to speak with one voice to defend the Human Rights Act.

The DSA have joined with 42 other organisations in a letter to remind political party leaders that the Human Rights Act protects us all from violence, abuse and neglect, and enshrines our liberty, free speech and right to protest in UK law. In essence it ensures all people are treated with basic dignity and respect.

Human Rights Day Letter - 10th December

 Further information can be found by visiting the website for the British Institute of Human Rights : www.bihr.org.uk

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FAQ's on Personal Independence Payment (PIP)

  • Thursday, 08 December 2011 12:38
Following feedback from the DSA and other organisations the Department of Work and Pensions (DWP)  have developed some Frequently Asked Questions  around the new Personal Independence Payment which is due to replace DLA for adults between 16 and 64 in 2013. This will help answer some of the concerns you might have.

You can follow the link to the DWP which will provide you with more detailed information.

The following link will provide you with more detailed information - http://www.dwp.gov.uk/policy/disability/personal-independence-payment/#faq

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Government reverses its decision to stop the mobility component of Disability Living Allowance for people in residential care

  • Friday, 02 December 2011 11:51

Maria Miller, Minister for Disabled People, has announced that the Government will no longer be cutting the mobility component of Disability Living Allowance for people in residential care

The Down's Syndrome Association and all the members of the Learning Disability Coalition (LDC) are pleased to see that common sense has prevailed. We welcome the announcement by the Government that the mobility component of the Disability Living Allowance will not be removed from people living in residential homes. The members of the LDC are working with the Government in consultation on the current Welfare Reform Bill to ensure that the introduction of Personal Independence Payments meets the additional cost of living with a disability.

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