For Families and Carers : Forthcoming ASC/DS Meetings

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DSA parent meetings enable parents and specialists to share information and experiences, and to guide DSA work. Our previous parent/carer meetings have focused on communication, looking after yourself, sensory differences and supporting behaviour positively.

Here is what parents have said about past meetings:

‘I am not alone!’

‘Just grateful to have been a part of an interesting day with great people, listening to other’s stories. Listen to groundbreaking new research was encouraging’

‘Meeting and chatting with other parents in the same boat is so important and valuable’

‘I was nervous about coming but the day/the group/the speakers were all very relaxed and informal. Thank you.’


8 November 2019, Cardiff

Understanding Dual Diagnosis of Down’s Syndrome and Autism, Looking after Yourself and Getting Help

Date: 8 November 2019
Venue: Learning Disability Wales, Llanishen, Cardiff

Geraldine White, chartered clinical psychologist, will discuss what we know about autism in people who have Down’s syndrome, assessment/diagnosis and interventions. Jane Mitchell’s workshop will address how to look after yourself and how important this is for you and your children. Julian Hallett will present on how to get the help you need. We know from our helpline services that many parents are not seeking or receiving the help they are entitled to.

To book your free place please contact Training@downs-syndrome.org.uk.

Refreshments & a light lunch will be provided.

You are welcome to share information in your networks but please be advised that the meeting is specifically for parent carers whose children have Down’s syndrome and also have additional, complex needs or autism spectrum conditions.

For your diary: future dates and locations for parent meetings, details to follow:

  • Teddington, 28 November 2019 (with guest researcher presentations)
  • Liverpool, 21 January 2020
  • Hull, 27 February 2020

Have you seen our closed Facebook group? 

The DSA Complex Needs and Autism Group is a private space for parents, family members and carers of children or adults with complex needs or with a dual diagnosis of Down’s syndrome and autism spectrum condition. 

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